Welcome
This website is a support and resource site for people with the condition known as lymphedema.Lymphedema is an accumulation of lymphatic fluid in the body's tissues which causing swelling. This swelling is most often in the arms and/or legs, but occasionally occurs in other parts of the body. The effects of lymphedema can vary from very mild complications to extremely painful and disabling disfugurement. In addition, those with the lymphedema are often susceptible to serious life-threatening infections.
The main focus of this site is the "questionnaire". Visitors fill out the questionnaire form that asks for information about their health insurance company, and any lymphedema clinics that they may have visited. When they submit the form, the information they provide goes into a database. Anyone can then search this database to read the ratings and opinions of others on the various hospitals, clinics and therapists that have been recorded.
The theory is that over time, we will slowly build up a consensus on what insurance companies are providing coverage for lymphedema, and which clinics have a good reputation among their patients. This information can be then be used by others in making decisions about what companies or caregivers to patronize.
Obviously, in order for this to work, we need to have as many people as possible contribute to the database. You can help by filling out the questionnaire yourself if you have lymphedema and have had any experiences with health insurance companies or caregivers that you'd like to share. Click on the "questionnaire" link in the menu to access the questionnaire.