Lymphedema Questionnaire

Clinics / Hospitals / Therapists

For simplicity, the questionnaire uses the term "clinic" to refer to any clinic, hospital, therapist or caregiving person or institution. This convention is used here as well.

Some clinics were not given a rating when they were submitted. These are near the bottom of the list in a separate section.

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Rating	Name	City	State/Province	Country	Extra Information
10	health partners	st.paul	mn	USA	Id like to find out some info on physical activities that are most suggested to keep fit when you have this condition.
10	hyperbaric unit at hermann hospital	houston	tx	USA	clinic opens at 7 am, and closes 2:30 pm. therapists are very helpful and informative.
10	All Saints Lymphedema Center	Fort Worth	TX	USA	Top-notch facility with excellent staff. Good follow-up and aftercare.
10	truman medical center	kansas city	MO	USA	is their a clinic in the kansas city, mo area ?
10	ST. Johns Lynphodema Cl.	Springfield	MO	USA	ST. Johns Hospital is one block away from the clinic, if you are from out-of-town, you can stay in the Hospitality room there, and you'll have a driver pick you up and drop you off for your appts. during your first 30 day treatment.
10	Rosanna	Rockledge	FL	USA
10	Excel	Indianapolis	IN	USA
10	Green Mountain Rehab	Bremerton	WA	USA	Debra Carpenter is one of the few lymphedema spoecialists in the Olympic Pennisula area. She is very knowledgeable about the condition and its treatments.
10	Mercy Hospital Karen Callow	San Diego	CA	USA	Karen is so full of knowledge it is very clear that she truly loves her profession. when I first went to Karen I was in pretty bad shape and she did wonders for me, as well as giving me the tools to treat myself. Karen is an absolute expert in the field
10	Doris Alton	Oneonta	NY	USA	Doris is extremely knowledgeable. She is constantly obtaining knowledge and applying it.
10	Allegheny Valley Outpatient Therapy	Natrona Heights	PA	USA	I have gone to three treatments and my leg has decreased in size down 10 centimeters. Having problems with the insurance company covering people with breast cancer, but not other types of cancer. Therapy for me is limited
10	Robin Blake	Murray	KY	USA
10	Compass Healthcare	Atlanta	GA	USA	SHE IS VERY CONCERNED & PERSISTANT IN HELPING ME TO BE EDUCATED, COMFORTABLE & MAKES SURE I GET ALL THE TREATMENTS & SUPPLIES I NEED, I CAN CALL HER WHENEVER I FEEL I NEED HER....SHE'S JUST THERE FOR ME.
10	Joe Arrington Lymphedema/Edema Center	Lubbock	TX	USA	I am a lymphedema therapist at the Joe Arrington Lymphedema/Edema Center of Covenant Health System. Our clinic is staffed by three certified lymphedema therapists and we are dedicated to the treatment of lymphedema and related disorders. We strive to educate patients, families, and the medical community about this commonly ignored or greatly misunderstood condition. We provide treatment upon physician referral utilizing Complete Decongestive Therapy or CDT and the treatment is tailored to each individual's needs, abilities, and goals. In addition, we provide free consultations to anyone who believes that they may have or be at risk for developing lymphedema.
10	HealthSouth-Shayne Welch	Chicago	IL	USA	Shayne was wonderful and so was her co-worker Kim. I couldn't have asked for better care.
10	Elizabeth Romick	New City	NY	USA
10	Erin, P.T.	Aurora	MO	USA	My therapist is one of the very best. She is very knowledgeable and understanding. I would recommend her to anyone.
10	St. Barnabas Hospital	Livingston	NJ	USA	Staff of 3 therapists specializing in Lymphedema. They have a comprehensive approach to patient treatment and care. They utilize MLD, bandaging, excersize, and sequential compression pumps at a low pressure when necessary.
10	Stamford Hospital Rehab Center	Stamford	CT	USA	This clinic has a Physiatrist Dr. Freedman who is very hands on involved with the patients treatment along with her Therpaist Jennifer.
10	St. Barnabas Hospital	Livingston	NJ	USA	Staff of 3 therapists specializing in Lymphedema. They have a comprehensive approach to patient treatment and care. They utilize MLD, bandaging, excersize, and sequential compression pumps at a low pressure when necessary.
10	Stamford Hospital Rehab Center	Stamford	CT	USA	This clinic has a Physiatrist Dr. Freedman who is very hands on involved with the patients treatment along with her Therpaist Jennifer.
10	St. Barnabas Hospital	Livingston	NJ	USA	Staff of 3 therapists specializing in Lymphedema. They have a comprehensive approach to patient treatment and care. They utilize MLD, bandaging, excersize, and sequential compression pumps at a low pressure when necessary.
10	Stamford Hospital Rehab Center	Stamford	CT	USA	This clinic has a Physiatrist Dr. Freedman who is very hands on involved with the patients treatment along with her Therpaist Jennifer.
10	Chestnut Hill Rehab	Philadelphia	PA	USA	The therapists were certified by the Fodder clinic in Germany. They were very informative and encouraging to me. They have recently started a support group.
10	Easter Seals	Montgomery	AL	USA	The therapist was extremely good and it was a successful treatment. I would go again and also recommend it to others.
10	Karen Baker	Mesa	AZ	USA	Compassionate, extremely knowledgeable, extremely effective in decongestive physiotherapy. If it wasn't for her, I'd still be in pain and crippled.
10	Karen Baker	Mesa	AZ	USA	Compassionate, extremely knowledgeable, extremely effective in decongestive physiotherapy. If it wasn't for her, I'd still be in pain and crippled.
10	ST. joseph's	ann arbor	MI	USA	At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/.
10	ST. joseph's	ann arbor	MI	USA	At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/.
10	ST. joseph's	ann arbor	MI	USA	At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/.
10	ST. joseph's	ann arbor	MI	USA	At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/.
10	Mirasol Lymphedema & Rehab Center	Las Cruces	NM	USA	Staff is wonderful. The therapist (Peter Ternedde)is very knowledgeable about lymphedema. He is also the only certified MLD massage therapist in the area. He also let me borrow a video tape on self massage and bandaging. He is working to help me be able to self-manage the condition once it is under control. The exercises are vey helpful. Plus he plans to have a Lymphedema Management seminar to teach clients self-massage and bandaging next month (January). He also started and helps sponor the local Lymphedema Support Group.
10	Breezeway Theraputic Center	Marysville WA, usa			Susan is the greatest. I don't know what I would do without her. It is her dedication to learning about MLD and desire to help others that has saved me. Although the treatment is expensive and not covered by my insurance. I feel like a new person after my 2 hour treatment. I hope she never stops providing this very valuable service.
10	RIVERSIDE HOSPITAL	OTTAWA		Canada	BRIAN WAS VERY NICE AND VERY HELPFUL.HE KNEW ALOT MORE ABOUT LYMPHEDEMA THAN MOST DOCTORS.
10	ST. JOSEPH	ORLEANS			DR.JOHNSTON WAS WONDERFUL,HE WAS NICE,HELPFUL,HE HAS THE DISEASE HIMSELF,AND WAS VERY SUPPORTIVE
10	TIDEWATER PHYSICAL THERAPY, 12420, warwick blvd	??			VERY RELAXING AND EDUCATIONAL ON MY CONDITION. EXPLAINED HOW TO CONTROL AT HOME MY CONDITION.
10	University Hospital	Syracuse	NY	USA	My therapist Chris is one of the nicest people I have ever met, they are very understanding of my problems, and also my situation because I am a college student quite embarrased of my situation. I go to school in Athens, OH and there is no one around here to preform message therapy. If there is anyway you know of one please feel free to contact me at my e-mail address.
10	Lymflo Therapies	Chapel Hill	NC	USA	The setting was pleasant and the therapists were knowlegeable and caring. The overall experience, and the quality of care, have been excellent.
10	healt clinic	londonderry	u k	ireland
10	Lerner Lymphedema Services	??	Florida	USA	I had treatments twice a day for four weeks.I had a very good experience there and learned how to wrap and care for my condition that is a lifetime condition. Everyone should have the educational experience to learn all you can about the condition.
10	Kessler Lerner	??	MA	USA	The therapsit that works at this facility is the one who worked in Boston at Lerner and he is the teacher for the Academy trained by Dr. Robert Lerner the best there is. Thank god for his knowledge and his persistence on helping this treatment get tot he USA
10	Healthsouth	Reno	NV	USA	Laurie Marlow was a top-notch educator and taught me self-care that allows me to care for myself now.
10	Healthsouth	Reno	NV	USA	Laurie Marlow was a top-notch educator and taught me self-care that allows me to care for myself now.
10	St. Pete's Hospital, Lympadema Clinic	Olympia	WA	USA	They were extremely courteous and very knowledgeable. I was referred from my Radiation Therapist and they assessed my arm, and performed Manual Lymph Drainage and told me things I had never heard before at another clinic. After my arm had gone down, they measured me for a new sleeve, and then insured that it fit when it arrived from Germany.
10	St Francis Hosptial--10th FL--Oncology Rehabilitation Center	Greenville	SC	USA	Well trained, symphathic therapist, very knowlegeable in treatment
10	All Saints Lymphedema Clinic	Ft. Worth	TX	USA	I have received an enormous amount of education and care. I have irradiated fibrocystic lymphedema..Each year it has improved. I go every six months. The arm responds more quickly each time and the therapies are getting shorter...Especially the last two years. Nutrition and lifestyle SUPER IMPORTANT!
10	UCLA Cancer Center	Los Angeles	CA	USA	They knew about the MLD procedure and I felt very confident with them but the expense was more than we could afford as was the drive.
10	Olympic Physical Therapy	Seattle	WA	USA	Excellent therapists who know alot about lymphedema and MLD.
10	Fargo Merit Care	Fargo	ND	USA	They were very informative. I had treatment every day for 3 weeks and continue to have ongoing treatment as needed.
10	PVHMC	Pomona	ca	USA	My therapist, Jamie is wonderful. I do not feel that I am being rushed. She has given me excellent advice and takes a lot of time with me
10	Body & Soul	Palos Heights	Il	USA	She is an RN who specializes in LE and other health problems, is Vodder trained, and is knowledgeable in alternative medicine.
10	Lerner lymphedema services	New York	NY	USA	Good info. on the condition. Wonderful physical therapists. Consistent monitoring by physicians.
10	Accent On Health Clinic	Corpus Christi	TX	USA	This is a small clinic that is very large on knowledge and compassion. I had extreme swelling of my left leg up into the trunk of my body. As of today, wearing comperssion panty hose I have small amount of swelling in my ankle. We can live with this. I don't know about any other clinics, as I believe you can't do any better than Accent on Health Clinic.
10	North Memorial Hosiptal	Robinsdale	MN	USA
10	Vodder Clinic	Walchsee,		Austria
10	Crystal Coast Therapy Services	New Bern	NC	USA	Tracy Sparks is wonderful. First time I have felt treated human and like I was not a freak. She not only helped my physical condition but my mental as well by treating me as a person with feelings in a bad situation. We need more like her in the medical profession.
10	LERNER LYMPHEDEMA SERVICES	SUNRISE	FL	USA	The doctor was very good in the dianostic of the disorder. Doctor King monitored the thearopist conducting the massage theorapy. The thearopy took a time period of two weeks. The clinical work is a process of 2 sessions a day. The results of the sessions were overwelming withinthe first week. Participation of the spouse is a must for me as my lymphedema is in my leggs. Even if no spouse is available someone should accompany to help on those days when the massage and the wrap is required quite exstensively through out your life.
10	St. Joseph Hospital	??
10	Hoag Hospital	Newport Beach	CA	USA	PacifiCare (via Greater Newport Physicians IPA) will pay for MLT with the goal toward teaching the patient how to self massage and bandage. They will not pay for \
10	Cresera Wellness	Williston Pk	NY	USA	Satisfactory Very expensive with no coverage
10	Dr Gopal Clinic	Mohali			THEY CARE THE PETIENT VERY WELL
10	Fairlawn Rehab	Worcester	MA	USA	This experience was excellent.. Tought me
10	Baptist Hospital East	Louisville	KY	USA	I could not find a single Doctor who knew much about lymphedema so to have this clinic near my home, and a therapist trained to treat lymphedena is a godsend. My therapist is experienced and also keeps educating herself on new treatments and studies. She has been a great help in coping with this condition.
10	Provena Physical Therapy & Sports Rehab	Joliet	IL	USA	I have a very good therapist. She has taught me a lot about my condition and how to treat it. I am still going for therapy. Treatment has been successful thus far. I would definitely go to this facility for further treatment if necessary. I would definitely recommend it to others.
10	Lerner's Lymphedema Center	Ft. Lauderdale	FL	USA	First and only clinic I went to. I live 125 miles away and trying to find a closer one. I am now on Medicare whereas I had to go to this county on my insurance plan. I would go back to Lerners in a heart beat. Excellent service and treatment. Personnel was friendly and helpful. Had a kitchenette if you wanted to bring your meals while waiting. Since I lived so far away I had a morning and afternoon session for two weeks to complete my treatment. That was two years ago. Trying to find a place in Vero or Ft. Pierce to go again.
10	HealthSouth, NorthWestern Hospital-Downtown	Chicago	IL	USA	My experience here was excellent. The therapist was very helpful and understanding on how I felt about having Lymphedema. Unfortunately my therapist has moved to the East Coast and I just hope that I can find a therapist that was just as wonderful as Laurie was.
10	Elks Rehab; ST. Lukes Medical Center	Meridian	ID	USA	Friendly Staff, they know what they are doing.
10	Rehab Center	Berlin	VT	USA	People were very warm and caring and very helpful. Very relaxing atmosphere. Ease of treatment table to go as low as below my knees for comfort of sitting, changing and removing bandages and dressing/undressing. Therapist was very good with therapy and answering questions regarding my lymphedema.
10	Hoag Hospital	Newport Beach	CA	USA	PacifiCare (via Greater Newport Physicians IPA) will pay for MLT with the goal toward teaching the patient how to self massage and bandage. They will not pay for \
10	Retreat Hospital (Physical Therapy)	Richmond	VA	USA	This isn't really a clinic per se. It is the physical therapy section of Retreat Hospital. They have a therapist there (Angela Denny) who is trained in Lymphadema Management. I highly recommend her to anyone.....she really helped me out! Angela is very caring and very informed. I'm sure she must have been the top of her class
10	moffit cancer host.	tampa	fl	USA
10	REHABILITY CENTER	ROCKVILLE	MD	USA	THEY WERE FRIENDLY AND HELFUL IN WORKING WITH ME FOR SOMETHING, I HAD NO IDEA WHAT TO DO...
10	St. Agnes Hosptial Lymphedema Clinic, Caton Avenue	??			The therapists were very timely with the treatments and knowledgable about the disease. The therapists were very friendly and showed plenty of concern for the patient.
10	Accent on Health	Corpus Christi	TX	USA	The theparist is the best and they realy know how to treat Lymphedema.
10	Joyner Sports Medicine	Beaufort	SC	USA	Kevin Green is one of the most compassionate and patient men you could meet. He has made this whole difficult time of therapy easier by being patient with questions, informative while treating and upbeat about progress (or lack of progress). Great clinic and staff.
10	st annes hospice	bolton	bolton	United Kingdom	took my gp three years to send me to the hospice, since going they have been of great help and comfort .
10	Mercy Catholic Medical Center	Lansdowne	PA	USA	The therapists involved in my care took the steps needed to try and get whatever my insurance would provide. The therapy truly works and does ease the pain and tenderness that evolves from the lymphedema.
10	BACK AND CONDITIONING CLINIC	LAKEWOOD	co	USA	THE PT AND OT ARE BOTH VERY WILLING TO LEARN AND EXCITED ABOUT HELPING-THE PT CAN GET BILLING APPROVAL AND SEEMS TO HAVE MORE EXPERIENCE--WE WERE HAVING THE OT SHARE THE TREATMENTS SO SHE COULD EXPAND HER KNOWLEDGE TOO--SAME TREATMENT AND WRAPS--BUT THE INSURANCE WOULDN'T COVER HER SO WE ARE JUST USING THE PT NOW-CLINIC IS VERY SUPPORTIVE AND FRIENDLY--EXCELLENT
10	lrgh-lymphedemic clinic	laconia	nh	USA	They are thorough, thoughtful, considerate and caring. They go out of their way to make appointments to fit my schedule. They are very informative
10	Olathe Rehab	Olathe	Ks	USA
10	Willis Knighton Medical Center	Shreveport	LA	USA	Katie is my physical therapist. She not only tends to the massage, exercises etc., she also builds your self esteem.
10	Sioux Valley	Sioux Falls	SD	USA	My therapist name was Kevin Horner, he gave me a free evaluation, then after 2 wks. of MLD, he said he felt he had down all that could be done, that has been almost 5 yrs. I wear a sleeve everyday and go on the pump for 30 min. every night
10	Excel Rehabilitation	Indianapolis	IN	USA
10	Southern NH Rehabilitation Center	Nashua	NH	USA
10	Center for Rehad/Sports/Wellness	Mission Viejo	CA	USA	This clinic was very beneficial to me. I am now using exercises and massage "Karen" taught me at home.
10	Memorial Hospital/Roger Klauer MD	South Bend	IN	USA	A physical/occupational therapist worked with me. She was very caring and helpful
10	ROGUE VALLEY MED CENTER	MEDFORD	OR	USA	THE REHABA DEPARTMENT HEAD DIAGNOSED THE LYMPHEDEMA, ALL THE OTHERS, DOCTORS INCLUDED DID NOT HAVE A CLUE AS TO WHAT WAS CAUSING THE PHANTOM/SUBJECTIVCE SWELLING
10	Lerner Lymphadema Services	New York	NY	USA	The staff was very knowledgeable and I went daily for 3 weeks. Had 2 massages per day and remained wrapped for 3 weeks. Used compression sleeves by day and bandaging by night.I also purchased a Reid Sleeve at a cost of $1,400.00. I may be the best way of controlling drainage, however, it is very difficult to sleep with.Unfortunately, Lymphadema Services in New York City is now closed and to my knowledge nothing has replaced it in New York City.
10	Lerners	new York City	ny	USA
10	Lymphedema	Tooting	London	United Kingdom	The staff there are fantastic and are very helpfull.Prof Peter Mortimer is one of the best doctors that i have seen for years.
10	Barb Osinga	London	ON	Canada	This is not a clinic, but a private therapist. With her help I lost 42 lbs. of fluid in my right leg. She is a wonderful person and therapist. ODSP has refused to pay for the treatment and so far I am over $3000 in debt to her. Due to the legislation in the Provincial Government, there is no funding for this specific kind of therapy. Which is crazy because ODSP has paid for everything else except for the actual treatment. Her name is Barb Osinga, and her number is 519-432-4375. My family and I are forever indebted to her for what she has done for us.
10	Ponessa Manual Lymphatic Drainage Clinic	Lancaster	PA	USA	They are my heros. Donna Ponessa owns the clinic. It is small, intimate. She molds the therapy to your lifestyle. Has indepth knowledge of lymphedema, and graduated from Vodder training.Her therapy was outstanding. She is also a joy to be around. She is compassionate and also has a good sense of humor.
10	cancer foundation	Perth	western Australia	Australia	very friendly and helpful and very willing and happy helpful people,nothing was to much trouble.Would recomend it to all and the lazer treatment was great,helped in a small way .Yes would go back again and again,excellent service.
10	Memorial Hermann, medical center	houston	tx	USA	oh my god ! I cant even begin to explain how great they were to me. I only had 1 issue with
10	North Star Lodge	Yakima	WA	USA	The therapists were very caring...my last appt was 11 Dec 2K1 and my dr wouldn't allow me more visits when I really needed them,as now my condition is 10 times worse & spreading.
10	Lake Forest Hospital	Lake Forest	IL	USA	My therapist Ellen was very nice and supportive. This location was recommended in the book "Coping With Lymphedema"
10	Fallon Goldstar, Goldstar Blvd.	Goldstar Blvd. Worcester	MA	USA
10	St. Peter's Hosp Physical therapy dept	Albany	NY	USA	Very instructive, hepled alot..taught me and my spouse.
10	Lymphedema clinic	Lancaster	PA	USA	These people will do anything you need. write letters, call for equipment, etc.
10	Lymphedema Clinic, Fairview-University	Minnapolis	MN	USA	They do great evaluation and great treatment. Couldn\'t ask for a better therapist. I recommend Patti Jo
10	St. Joseph South Campus Occupational and Physical Rehabilition Center	Bellingham	WA	USA	I have been very fortunate to be assigned to this center. Cindy Fredericks, Beth Watkins who are the PT's wrapping me and working with me have been outstanding. Cindy has been my PT since March, 2002 and we have had outstanding results and she is helping my battle 10 years of untreated/undiagnosed lymphedema. I would recomment Cindy or Beth to anyone.
10	Childrens Medical Center of Dallas	Dallas	TX	USA	if we could go high there won't be a number to give them they have been very good to us
10	Loma Linda University Medical Center Rehabilitation Institute	Loma Linda	CA	USA	Friendly, knowledgeable staff, well-equiped, and motivational.
10	Lymphedema treatment center	Sacramento	CA	USA	very kind compassionate people. In 5 treatments, I was taught how to compression wrap my fingers and arm, I was provided with a custom fit glove and sleeve, and my HUSBAND was taught how to provide MLD therapy on me. My success is fantastic. They worked wonders with insurance, fabulous place. Need publicity!!!
10	WOUND AND LYMPHEDEMIA CTR.	OAKLAND PARK	FL	USA	EXCELLENT DR.(McDONALD)AND RN NANCY SIMS &(THERAPIST) HOLDING SUPPORT GROUP MONTHLY MEETINGS IN DR OFFICE. FACILITIES ARE ULTRA MODERN WITH VIDEO'S AND DIGITAL PC MEASURING EQUIPMENT.
10	Shriners Hospital	Sacramento	Ca	USA	I stayed at the Shriners Hospital for two weeks, confined to bed using the Reid Sleeve and pump. If my leg had drained like they wanted, they would then think about surgery. At that time, we moved to Texas. I am still interested in this treament, but now I'm in Texas.
10	Carle Clinic	Urbana	IL	USA	I started here just after my mastectomy. My doctor recommended that I get a compressive sleeve first. Then I was sent to a Physical Medicine Doctor. He had me fitted with a compressive sleeve that was made to measure for me ( the first was nearly over the counter simple). Then he had me go to the therapy unit for pump treatment. I seemed to respond well to that, so he prescribed a Wright pump. I have used that for the past four years. Recently I heard that they had added manual message to their list of services. I am just finished with a week's treatment at that facility. I went to the Clinic each morning for massage. Then compressive bandaging was put on my arm. I left it on for the rest of the day and went back in the next morning for a repeat performance. They would really rather I had continued for 2 or 3 weeks. I, however, found that I could be away from home only so long. (Carle is about 100 miles from my home.) I did feel that the treatment was good. !
10	kaiser	portland	or	USA	This is a new program at kaiser. The theropest is very negligible. still learning and educating. She is the first person I ever found that has a clue.It was a good experience.
10	The Therapy Center	Knoxville	TN	USA
10	Angelo Zappacosta	Northbrook	IL	USA	Angelo is a message therapist. He was very concerned about my comfort level. He was extremely professional. I knew that I was there to have the fluid moved from the right side of my body to the left for it to drain out of my body. He was concerned that I might have trouble with him working on my breasts. I explained that I was there to have him help me and I thought that was one area that he would be working with so I had no problem with him. I was given several choices of therapy. After speaking to Angelo I choice him because he listened to me and what my concerns were. I found the experience very comfortable. He asked that I record all my reactions to the massage so that we can see if it worked for me.
10	River's Edge Physical Therapy	Great Falls	MT	USA	The therapist I worked with is the only certified MLD in the state. He is very compasionate and dedicated.
10	CBF, Inc	Knoxville	tn	USA	The therapist, Kathy, was excellent. She was well trained. Also, Kathy put you at ease and this helped during the entire process.
10	Genesee Hospital Physical Therapy Lymphedema CLinic	Rochester	NY	USA	Although the treatment appeared to be helpful the effectrs lasted only 6 months which was only a two month improvement in intevals between serious infectious bouts. Genesee Hospital is the only8 one in the Rochester region. Roswell Park in Buffalo recommended this to us
10	Genesee Hospital Physical Therapy Lymphedema CLinic	Rochester	NY	USA	D AS SERIOUS BY MY EMPLOYER!!! Genesee Hospital is the only8 one in the Rochester region. Roswell Park in Buffalo recommended this to us
10	UNC Hospital	Chapel Hill	NC	USA	Very good. I was fitted for the Wright Linear pump.
10	Leicestershire Hospice	Leicester	Leicester	United Kingdom	I have attended on several occasions for treatment for Lymphedema of the leg.
10	Healthsouth/Northwestern Memorial Hospital	Chicago	IL	USA	The clinic was great...when I started, my lymphedema foot/leg was 9 centimeters larger that my normal foot/leg. After two weeks of therapy, it was only 1 1/2 centimeters larger.
10	Regional Lymphedema Treatment Program	South Bend	IN	USA	Have been very thorough, teaching me and my husband
10	Aurora	San Francisco	CA	USA	Treatment was successful. The very first day made a dramatic change. After five doctors telling me that I would just have to live with it, Saskia Thiadens was a life-saver. She convinced my doctor for me to have treatment.
10	St. Mary's Hosiptal	Milwaukee	WI	USA	This is the only place that take my
10	Mayo Clinic	??	MN	USA	This is where my condition was first diagnosed.
10	at the Breats Care Center. Fletcher Allen Health Care	Burlington	VT	USA	Several Vodder-certified therapists. Excellent treatment.
10	ochsner hospital	new orleans	la	USA	brooke was brought to oschner hospital when
10	linda miller	phila.	pa	USA	Linda Miller has offices in Cherry Hill, N. J. and Phila., Pa. She wqas recommended to me by 3 hospitals, major centers in Phila. for breast cancer. He used the Israe3l pump machine after manual therapy, but has a difficult time getting insurance to pay for the rental of the pump whyen patients require this. My lymphedema has gotten very severe the past 3 months. I have treid everything, and see Linda once or twice a week. There has been little improvement. I do well at her office after I use the pump and feel that I should have this machine at my own home. Her distributor is looking into the possibility of my insurance paying for rental and possibly purchasing this Lymphya Press machine.
10	Lymphedema Clinic @ St. Joseph's Hospital, 50th & Chambers,	Milwaukee	WI	USA	This clinic has 2 therapists trained in the Vodder method of therapy. Both were very knowledgable, friendly, easy to work with. Education and self-management is stressed. Over 2 months of visits,I learned how to bandage, exercise, and self-massage. They told me it can take a year or two of self-therapy to retrain the lymph to use a different drainage path over the shoulder. I followed the program for about 3 more months on my own, but never went back for my follow-up visit. (And they never contacted me to follow up.)
10	St. Agnes Medical Center	Baltimore	MD	USA
10	Aurora	San Francisco	ca	USA	Very positive. They gave me hope after five drs. said that there was nothing could be done. Saw results the first day. Excellent info. and training for self-management. Very caring & professional staff. Would highly recommend them.
10	The Ultimate Health Center	Asheville	NC	USA	I have had MLT/CDT at Horton Rehabilation Center in Middletown, NY, St. Anthony\'s Rehab.in Goshen,NY, The lerner Center in NYC, Kessler Inst. in Paramus, NJ and did\'nt get the results in any of these places that I got at The Ultimate Health Center. Also, Vassar Lymphedema Clinic in Poughkeepsie refuse to see me. the therapist at the Ultimate Health Center, Peter Glasser really knows this disease and is the ONLY therapist I trust.I have secondary lymphedema in my right leg from surgery in 1990 or melanoma on my right foot. The lymph nodes were clear the cancer had already metastized to my brain.I am still in total disbelief that NO ONE of the TEAMS of doctors I had that NOT ONE OF THEM EVER TOLD ME ABOUT THIS DEVASTING DISEASE OR WHAT TO LOOK FOR.
10	KAP'IOLANI WOMEN'S CENTER	HONOLULU	HI	USA
10	Lerner Lymphedema Services	Princeton	NJ	USA	LLS helped me realize there are others like me...being there made me feel "normal" again. I learned how to maintain my lymphedema and live a normal life. The visit saved my life and my mental attitude! I've recommended them to anyone I've met with lymphedema.
10	Johns Hopkins	Baltimore	MD	USA	i had 225 pound tumor removed in 1999 it hasnt come back im still recovering for more info email me
10	MD Anderson	Orlando	FL	USA	Very informative...
10	St.Thomas Hospital	Nashville	Tn	USA	Excellent facility-please call us if you are in the area to set up an apt.-ph#615-222-6671. You must have a doctors prescript. You may also call 615-222-5553 with any questions re: lymphedema or treatment.
10	University HOSPITAL	Cleveland	Oh	USA	This is the first place I received a proper diagnosis. They did not try to rush me through, but took the time to explain the condition to me and provided me with information about ongoing treatment.
10	Ellen Poage, RN,MT,MLD	Fort Myers	FL	USA	Ellen provides excellent, professional care.
10	Mitcham Rehab Clinic	Kingswood (nr Adelaide)	s. Australia	australia	Outstanding MLD, the best I've had. Really saw results!! Used Casley-Smith method. Very impressed. Got two sleeves that fit great. Very nice and compassionate people. I also did experimental laser therapy.
10	Summacare Lymphedema Clinic	Akron	Ohio	USA	P.T.s were very knowledgeable with treatment and helpful during and after treatment.
10	Fenton Physical Therapy	Fenton	MI	USA	Great PT, is working hard on decreasing the size of my arm. But the office does not have a PT that specializes in lymphedema. They know how to do the lymphatic massage, but as far as protocal they are unsure.
10	Virginia Masion	Port Angeles	wa	USA	Efficent, friendly and concerned. Doctor Gipe actually saved my life by detecting a tumor in my breast. He ordered a mamograph that was only my second mamograph in 61 years. The first was somewhere back in the my 30s.
10	General and Vascular Surgery	Port Angeles	wa	USA	Excellent surgeons in this clinic. Dr Wendel was my surgeon.
10	All Saints Hospital	Ft. Worth	TX	USA	This is the only treatment that has helped me but
10	Health South Rehab	Birminghal	AL	USA	The Physical Therapist was very helpful and was able to get insurance to provide necessary time and equipment for treatment.
10	Mayo Clinic	Rochester	MN	USA	AS far as i know it was great. I was only in 6 th grade when i went and didn't quite understand all that was being siad. Now that I have had it for so long i have come to know a lot about what I have. By what my doctors say The Mayo Clinic is very good.
10	Holston Valley Med. Center	Kingsport	TN	USA
10	Stanford Lymphedema Center	Stanford University	ca	USA	Although the cause of my illness was inconclusive, the four weeks of testing, treatment and therapy were quite welcome. I am from GUAM - NO ONE ON MY ISLAND COULD TELL ME ANYTHING ABOUT LYMPHEDEMA - OTHER THAN IT WAS NOT CURABLE.
10	PEAK-Cheri Ware	Bemidji	MN	UAS	The MLD therapist is LaDuke trained and excellent.
10	Total Rehab	Stillwater	OK	USA	Therapist is very thorough, conscientious, works with insurance company very well and really cares about her patients. I highly recommend her.
10	Munson Health Center	Traverse City	Mi	USA	The people were very caring and informative. Made sure I understood everything and felt ready to do the maintenance on my own by the time I was done. Wonderful experience.
10	Emily Iker, M.D.	Santa Monica	ca	USA	She's great. I've only had one treatment (battling insurance for more) and while I was there, she introduced me to another patient who has had regular treatment for SEVERE lymphedema and has experienced incredible results.
10	Physicians Medical Center	Richland	WA	USA	Ms Diane d' St Croix is the main (and only) lympatic drainage massage therapist in the Tri City Community - which consists of three cities of 40,000 population or more - she was trained by someone by the name of Chickley - his technique is far above the Vodder treatment. She will be fully certified by November of this year. Hopefully others will follow. Getting an appointment with her is a major pain .
10	Lymphedema Clinic University Hospitals of Cleveland	Cleveland	oh	USA	Absolutely wonderful, it was the first time in years I was able to loose the lymph fluid without lasix. I was taught to use MLD and to wrap my leg for maximum effect. Dr. Plotkin and the therapist/nurse Mary Lou made my return to work full-time possible as I was on a disability leave at the time. What I learned from them was priceless.
10	Idaho Elks Rehabilitation	Boise	id	USA	The Clinic and all the people who worked there were great.
10	Bryn Mawr Hospital	Bryn Mawr	PA	USA	Personalized, professional service from Deborah Dawson MSPT
10	East bastist Hospital	Louisvillie	Ky	USA	They were very good about explaning what they were doing.
10	All Saints Hospital-Lymphedema Center	Ft. Worth	TX	USA	Fantastic results.
10	north broward medical group dr. macdonal, 4080 n ocean blvd ft	lauderdale	fl	USA	this group of people are very good and kind but they are very much interested that the got pay for what they did. but i was treated very well other wise
10	Fairfax Hospital, Physical Rehab.	Northern	va	USA	It was a miracle treatment. I am thrilled with them.
10	lRGH hOSPITAL	lACONIA	nh	USA	mY EXPERIENCE WAS VERY GOOD, EXCELLENT IN FACT BUT UNFORTUNATELY FOR ME IT ISNT WORKING VERY WELL AS i HAVE A NUMBER OF OTHER MEDICAL PROBLEMS. i AM HAVING STOMACH BY PASS SSURGERY IN A COUPLE OF WEEKS SO HOPEFULLY i WILL BE ABLE TO CONTINUE ONCE i AM ABLE AND CASN LOSE A CONSIDERABLE AMOUNT OF WEIGHT.
10	lRGH hOSPITAL	lACONIA	nh	USA	mY EXPERIENCE WAS VERY GOOD, EXCELLENT IN FACT BUT UNFORTUNATELY FOR ME IT ISNT WORKING VERY WELL AS i HAVE A NUMBER OF OTHER MEDICAL PROBLEMS. i AM HAVING STOMACH BY PASS SSURGERY IN A COUPLE OF WEEKS SO HOPEFULLY i WILL BE ABLE TO CONTINUE ONCE i AM ABLE AND CASN LOSE A CONSIDERABLE AMOUNT OF WEIGHT.
10	MCV	Richmond	VA	USA	Therapists were highly trained; strong advocates.
10	Des Moines General Hospital	Des Moines	IA	USA
10	Excel Rehabilitation	Indianapolis	IN	USA	They were great....it is just too far away from my home for me
10	D.T. Watson	Sewickly	PA	USA	They helped David get the pump for his legs but, the insurance company wouldn't pay for any of the services.
10	Maine Coast Memorial Hospital Physical Therapy Dept.	Ellsworth	ME	USA	Marie-France is a PT that is very knowledgeable and does a great job of both manual drainage and fitting for a sleeve. She was very helpful in giving me both information on how to treat lymphedema and how to keep it from getting worse.
10	The Lymphedema Treatment Center	Newport News	VA	USA	The staff is very friendly and knowledgeable. They encourage patient comments and suggestions, and the atmosphere is very professional and private.
10	All Saints Hospital Lymphedema Center	Fort Worth	TX	USA	The facility is very well appointed and modern. The staff are courteous and professional. The treatment was very successful. I lost over 30lbs of fluid and over 24 inches of diameter in my legs. The staff vere very helpful in instructing me how to bandage and how to use the suppression garments. The center also has an on-site exercise facility where I was shown the proper exercises to perform. I have already returned for follow-up treatment 2 years after the initial visit. I highly recommend All Saints.
10	The Therapy Center	Knoxville	TN	USA	Mary Jo Marino is the PT and she devotes her life to this. She works with Children and adults, some who are paralized. She works 7 days a weeek and takes patients who aren't covered. She is a very christian women who believes this was her calling. AWESOME!!
10	lerner lynphedema	princeton	nj	USA	They were very, very compassionate to all the people that came for treatments. We felt like one big happy family.
10	PEAK-Cheri Ware	Bemidji	MN	UAS	The MLD therapist is LaDuke trained and excellent.
10	pomona valley medical center	pomona	ca	USA	on-time, friendly, patient,professional staff. listens intently. takes time to insure home instructions are fully understood and that exercises and massaging techniques are in compliance to promote healing.
10	sunnybrook med.ctr	toronto	ON	Canada	DR.SIBBALD IS A SPECIALIZED DERMOTOLIGIST IN LYMPHEDEMA AND HIS STAFF ARE FULLY QUALIFIED.
10	OTP	Richmond	VA	USA
10	Lakes Region Hospital	Laconia	NH	USA	These therapist know more than any Doctor does about this problem and a problem it is!
10	Mason City Medical Clinic	Mason City	IA	USA	Would like to know more about pharmacological Tx.
10	Mason City Medical Clinic	Mason City	IA	USA	Would like to know more about pharmacological Tx.
10	Southwest Lymphedema Services	Albuquerque	NM	USA	Re: insurance co. and payment - it was my plan which didn\'t pay for these services, but I know other plans with the same co. did pay for the treatments. Fortunately, the women running this clinic were willing to give us a discount since we were paying out of pocket.re: clinic & treatment - I was very pleased with their service and my leg responded quickly. I recommend them highly.
10	coalfield medical	coalfield	tn	USA
10	st.petersburg general outpatient therapy	saint petersburg	fl	USA
10	Trinity Hospice	Blackpool	Lancashire	United Kingdom	They have set up a Lymphoedema support group and treat both primary and secondary suffers
10	kahi mohala	ewa beach	HI	USA	i am gay
10	ST. PETER\'S REHAB	OLYMPIA	WA	USA	Therapists are very knowledgeable. Hospital offers inpt rehab for lymphedema. I experienced good results in reduction and wound care.
10	Physical Therapy & Rehab Specialists	Midland	MI	USA	Certified lymphedema therapist with a manual therapy background
10	Flagstaff Medical Center	Flagstaff	AZ	USA
10	pinnacle health	harrisburg	PA	United States
10	Soft tissue Therapy of Brevard	Melbourne	FL	USA	Mike McNally is the massage therapist and he is wonderful.
10	Roswell Park	Buffalo	NY	USA	This clinic was the only one that would evaluate me. I had no know cause for the swelling and they evaluated me after 11 years of wondering what was wrong with me. Doctor after Doctor said the swelling was normal water weight. When my leg started bulging 8 years into it, I forced the doctor\'s hand and asked to be referred to Roswell Park after speaking with the head of their physical therapy department. The confirmed that I did have lymphedema and started me on treatment.
10	Franchesca Clay	Virginia Beach	VA	USA	Franchesca Clay was an excellent therapist. With a problem such as Lymphedema that not many people know about including the doctors, she took care and patience in treating me. I was scared about my leg. And she explained every stage to my therapy in detail.
10	House of Health	Ada	OK	USA	The Therapist is very well educated and wonderfully qualified!! She has brochures, and charts on site. She was trained with Upledger, and Dr. Chickly himself. She CranialSacral Therapy, which is blended into her Lymph drainage therapies.
10	Lymflo Therapies Inc	Chapel Hill	NC	USA	My daughter is 3 1/2 years old and has been getting treatment for 3 years. she started treatment at 6 months old. Lymflo Therapies Inc. are great with and answer any questions my daughter or I have.
10	Mayo Lymphadema	Rochester	MN	USA
10	Good Samaritan Hospital	Vincennes	IN	USA	Would recomment this hospital to anyone who had lymphedema. Has an excellent theraphist.
10	Good Shepherd Hospital	Barrington	ILLINOIS	USA
10	Meritcare	Fargo	North Dakota	USA
10	Therapy Concepts	Prairie VIllage	Kansas	USA	I want to say that this is the finest resource for patients I have found. After being sent to several other places by my doctors - I found this place from a lady at church who has lymphedema too. The director has over 25 years experience, and her therapists are wonderful- every employee is extremetly professional. I had lost hope, but now - I\'m glad I found Therapy Concepts. I also heard a few years back she had one or more employees embezzle money and try to open thier own shop, so maybe thats the reason for the otehr message - all I know is they see alot of patients every day, and we all get treated exceptionally well - even the ones without insurance. I\'m glad I found this site so I can tell other people about the hope there can be for lymphedema when you find a really experienced clinic - like this one. I wish you all the best in your journey, God bless each of you.
10	Olympic Physicial Therapy	Seattle	WA	USA	They have mulitple clinics in the greater Seattle are that provide MLD and bandaging. One of the few clinics that offer the service
10	Specialty Rehabilitation	Newark	DE	USA	Exceptional clinic specializing in the treatment of lymphedema, cancer rehabilitation and women\'s health. Beautiful atmosphere, caring staff and excellent results!!!
10	wellness one	cary	nc	USA	OT Phyllis has been a godsend. Other therapists have been very unresponsive to mt quality of life issues. Never was taught to properly wrap, was improperly fitted for compression garments before... limb is almost normal size and range of motion is greatly improved
10	Mayo	Rochester	MN	USA
10	Annapolis Lymphedema and Therapy Chenter	Annapolis	MD	USA	This is the first clinic that I had to pay for my bandages and supplies because they said they did not get reimbursted from the past from other companies. I have not sent in paper work yet to get reimburst because I am going though therapy now. Before this year the other companies sent in the paper work.
10	Health Horizon		MD	USA	This was the first one I ever went to in 2002.
10	The Lymphedema Center	Annapolis	MD	USA	Went to this one in 2003. Same insurance company (Bluecross/Blueshield) but may have been under a different co.name Don\'t remember address
10	Kesslers	Annapolis	MD	USA	Not quit sure of the name. Name was changed went there in 2004
10	Wymer Physical Therapy	Corpus Christi	Tx	USA	Therapist knowledgeable regarding lymphedema and associated problems. Courteous and informative. Provided training to family members in myofascial lymphatic drainage to assist in care at home & fitted with custom compression garments which have helped tremendously. I had seen another therapist in town but was not impressed with them and heard about Richard Wymer form a friend.
10	clairmont center	longview	texas	USA
10	The Path To Wellness	Tulsa	OK	USA	Patricia J DeMoss RN/BSN/LLCC is a Certified Lymphatic Therapist, from The Upledger Institute. She herself has lymphedema and understands the ins and the outs of this desease. She is highly educated and yet down to earth. She mixes Lymph, CrainoSacral & massage in a wonderful treatment, that is low in price and affordable. 918-494-0082
10	Physical Therapy for Women	Wilmington	NC	USA
10	Lymphedema clinic	Bangor	ME	United States
10	White Craine Studios	Tulsa	OK	USA	I have had groin surgery, after a vaginal hysterectomy; I went to Patricia J DeMossRN/BSN/LLCC , trained at Upledger Institute; She was awesome!! She now is the only therapist who has taken the Advanced Lymph Course II, in Oklahoma. \
10	Bandagesplus	Miami	FL	USA	This is a clinic where the owners are well trained therapist. Renee being a RN as well as a massage therapist, she has taken her lymph training with Upledger and Vodder courses . Her husband also has class\'s and is a fitter of the garments as well as their daughter.!!! If you need supplies they will help you in every way possible, if you need work they have a clinic!! you can reach them via computer www.bandagesplus.com Good Luck!!
10	Star Physical Therapy	Nashville	TN	US	A welcoming atmosphere with great results! Please call if you need Lymphedema Therapy (615) 778-9894
10	White Crane Studio	Tulsa	OK	USA	I highly recommend Pat DeMoss at White Crane Studio(918-633-5100). My husband has had lymphedema since an accident when he was 20 (now in his 50\'s). Not only has Pat\'s skill reduced the swelling in his leg, but it has cleared up the congestion in his lungs (causing chronic bronchitis) due to an overload to his lymph system after all these years. She has advanced training from the Upledger Institute in not only standard lymph drainage therapy, but also advanced training in deep lymph therapy which no one else in Tulsa has. Her rates are very affordable and her technique is excellent.
9	Lahey Clinic	Burlington	MA	USA
9	Florence Barna	Fullerton	CA	USA	Extremely well informed and able. Very caring and sympathetic. St.Jude Lymphedema Clinc is fairly new and the Doctors associated with the hospital are very supportive.
9	WOMENS COLLEGE HOSPITAL, DERMATOLOGY DEPT.	??			I WAS RECCEOMMENDED TO SEE A DR.SIBBALD WHO SPECIALIZES IN EDEMA.MY LEGS HAVE BEEN MONITORED SINCE THAT INTRO SOME 3 YEARS AGO. MOST OTHER DERMATOLIGISTS KNOW VERY LITTLE ON HOW TO CORRECT MY PROBLEMS.BUT,THERE IS NO CURE.I AM A MAN OF SOME 380 LBS.WHICH MAKES IT MORE DIFFICULT TO HEAL MY LEGS.
9	pomona valley comm.hosp.p.t.	pomona	ca	USA	compression boots wraped both legs with wet
9	Cleveland Clinic Foundation	Cleveland	OH	USA	Insurance would only pay for treatment by a certified occupational therapist in their network which was only at the Cleveland Clinic. I went there for my breast cancer surgery and treatments, so when my arm developed lymphedema, I went back to the doctors there. Although the therapist was good, getting in only 1x week to see her for only 1 hour was challenging. There is only 1 person in the entire Cleveland Clinic certified in Vodder technique. I did not get enough manual lymph drainage. I did get a glove and sleeve but my condition never went down to a close to normal level. The whole idea was to go through the process so I could get a glove/sleeve prescription.
9	Kessler institute of Rehabilitation	Various locations	NJ	USA	Difficult to get someone with more than a few hours of training
9	PennTherapy and Fitness	Westampton	NJ	USA	THe clinician is very knowlegable and the progam through the University of Pennsylvania is comprehensive. I did have to purchase my garments from a pharmacy, however the therapist was excellent is making sure I received teh right garment and making sure it fit right and I knew how to put it on!!
9	Aurora Health Care-Lymphedema Clinic	Oshkosh	WI	USA	very accommodating to my needs, did not rush treatment, knowlegable staff. This is the only clinic available in my area for lymph treatment.
9	Princess Royal Hospital	TELFORD	Shropshire	United Kingdom	New clinic run by dedicated therapist who trained especially to take this job
9	Baptist East Hospital	Louisville	KY	USA
9	St. Joseph Mercy Hospital	Ann Arbor	MI	USA	Therapist was very good and quite knowledgeable. I was pleased going there.
9	Lerner center	??	NJ	USA	Peopke at the clinis ere very kind and supportive, however I found the treatment to be quite unreasonable and difficult. I was not able to maintain treatment after leaving t he clinic. I wouldn't recomend it to anyone who's not willin gto spend a great portion of their time in treatment or had difficulty sleeping in bandages. It probabaly would be easier for ther people that only have lymphedema in one extremity, but mine is in all four so it took an enormous amount of time. Most importantly, the treatment works if you comply and keep up with it.
9	Kessler Horizon Lymphedema Centers	Ellicott City	MD	USA	The therapists are very efficient, professional, caring of the patient's comfort, responsive to questions, work closely to be prompt for their appointments.
9	summa health systems/akron, ohio, usa, lymphedema	summa health systems/akron	ohio	USA	it was pleasant nothing special
9	Center for Orthopedic and Lymphatic Physical Therapy	Port Orchard	WA	USA	I was taught how to do manual lymphatic drainage massage myself, plus was treated at the clinic for several visits.
9	Carolinas Medical	Charolette	NC	USA	Dr. Stewart was very helpful and promising that her program would work for me. The lymphedema in my right leg was beginning to show signs of improvement when I found out that the insurance I have would not cover my therapy. In order for them to pay I have to have therapy in South Carolina and guess what? There are no clinics in South Carolina. So now I am just stuck with 200 + pounds of fluid in my legs and abdomen.
9	st elizabeth scott street	lafayette	IN	USA	the ladie who did my treatment was very nice and told me alot i when twice aweek for six weeks i wear a sleve and hand glove for 8 hrs aday and a wrap at night i still had alot of swelling and that been almost a year ago and still hurts and some of my breast is still numb
9	Mid-Atlantic Lymphedema Center	Ellicott City	MD	USA	The atmosphere was very positive - even fun. They were very thorough and gave lots of explanations about the therapy. My experience was very successful and positive. They were helpful and patient with my insurance problems.
9	Vanderbilt Stallworth Rehabilitation Hospital, 2201 Capers Ave	Nashville	TN	USA
9	Allsaints Hospital	Fort Worth	TX	USA	My experience at this clinic is very nice becasue the the staff is equipped with CirCaid brnad gaments for my leg an dthey have offered me many excercises to do also. The actual location has been around for about 5 years now abd is staffed witth former Physical Theripists. This is the only Lymphedema location taht I aware of and any other treatments tahtI have gotten came from doctors who are not familiar with Lymphedema.
9	Ctr for Physical Therapy & Exercise	Poway	CA	USA	Jennifer Reed (MSPT) is the lymphedema therapist. She has had extensive training and practice as a Navy officer. I started treatment with her just a month after some swelling in my hand was noticable. I wear a compression sleeve and have had a custom gauntlet made that covers my fingers to the end digit. Since the medicare prescriptions for treatment expire in one month, I usually have treatments of 1-2 a week for that time. Then Mrs Reed has given me a 13 Step MLD Home Program to follow. By doing the home program plus my husband massaging the area I cannot reach, my lymphedema has been kept more or less under control. I do not see the oncologist very often anymore, and it is difficult to get prescriptions. When my arm becomes sore, uncomfortable and I am unable to lessen the pressure, I obtain another prescription and return to Jennifer for treatment. Since my surgery was recent (March 1998) I have not visited any other clinics. In fact, Poway is !
9	Kaiser Sunset	Los Angeles	ca	USA
9	Mayo Clinic	Jacksonville	FL	USA	It was a pleasant experience. They showed me how the Jobst pump could work.
9	Lymphedema Theraphy	Woodbury	Ny	USA	I just had a consultion and made a treatment plan for 20 days of therapy. We are waiting to see if the insurance company will pay it. If not... I guess there is nothing else to do. I found the staff very nice and aware of this problem. I have had the sypmtions for 3 or so years but now I finaly have a diagnosis.
9	Sacred Heart Hospital/Physical Therapy Unit	Spokane	wa	USA	The staff at the clinic were great - very helpful and very well trained. I would indeed go back again if my insurance would pay and if it were closer to my home. A 6 hour drive is not always a do-able thing. I would recommend them at the clinic - they were wonderful.
9	Mid-Atlantic Lymphedema Center	Rockville	MD	USA	I've only been once. I start my actual treatment on 7/10/00
9	Oconomowoc Hospital	Oconomowoc	WI	USA	The therapist was excellent. She provided me training in massage, exercises, wrapping. However my insurance company rejected the referral and I had to stop going because I could not afford to pay for it myself. The therapist put me in touch with a compression company and I was able to buy a breast unit myself. I would go again and recommended it to a friend. However, I will not be able to because of insurance reasons.
9	University Hospital LE Clinic	Stony Brook	NY	USA	Therapist works WITH me to find right compression vests to encompass chest wall, underarm and bicep. Caring, compassionate, funny and a darn good therapist!
9	NorthWestern Memorial Hospital	Chicago	IL	USA	The lymphedema started on my left inner thigh. I had surgery to remove the mass on the 30th of August. They ended up taking about 11 to 15 lbs. of tissue and fluid. I was there for three more days. The staff was wonderfully understanding, and my Doctor helped me through it.
9	Legacy Cood Sam.Oncology Services	Portland	or	USA	Very compassionate and good physical theraphists. Worked very hard with and for me. Couldn't have been better. Great results. Did not have needed support at home. Husband supportive at 1st but it came out later that he hated wrapping my"fucking legs". I have a CFS leak and cannot bend over for the length of time it takes to wrap legs myself. New DR.with the changed medical plan does not beleive in mannual lymph drainage. Will not refer me th have my legs massaged. Now in the "Providence Hospital"PMG group and they do not have a clinic or treatments for lymphedema available. Legs in trouble. Need new garments. etc. No refferal to get them.
9	Lymphedema Therapy	woodbury	NY	USA
9	Olympic PT	Seattle	WA	USA	Olympic hired a fabulous PT who has lymphedema, studied in Germany and trained a cadre of people in Seattle. Some of them have branched out on their own, including my 2 favorite folks.
9	Northern Vascular Support, Inc.	Chicago	IL	USA	I am a 49-year-old female who had a mastectomy in 2002. I completed chemo and radiation therapy that same year and was referred to a lymphedema therapist by my oncologist. Soon after my therapy was completed, I was fitted for a compression arm sleeve and glove by a company called Northern Vascular Support. I found them to be very accommodating and helpful.
9	Theraphy Solutions	Kennewick	WA	USA	They are the only one in the area in which I live that now anything about the manuel (Vodder) treatment.
9	UMC Pain Center	Lebanon	TN	USA
9	HealthSouth Lymphedema Clinic	Texarkana	TX	USA	Their mission is to treat the patient, family andcreating a treatment plan that is customized for each individual. Education, MLD/CDT, Speacialized therapist(inpt/outpt)-2
9	Providence Kodiak Island Physical Therapt	Kodiak	Ak		My therapist is extremely well trained. She has a Master\'s Deree in Physical Therapy and is a certified Lymphedema Therapist.
9	Providence Kodiak Island Physical Therapt	Kodiak	Ak		My therapist is extremely well trained. She has a Master\'s Deree in Physical Therapy and is a certified Lymphedema Therapist.
9	SSM Rehabilitation	Lake St. Louis	MO	USA	My therapist was well educated and received over 150 hours of training to assist patients with lymphedema. She shared important information during each visit; helpful dietary tips, skin care management, compression wrap training, advice about compression garment usage, techniques to utilize during MLD, and genuine concern for my \
8	William E. Guy, M.D.,P.A.	Jacksonville??	FL		I saw one other therapist, but I can't remember her name. She lives here in Tallahassee, FL. She just massaged my leg and wrapped it up in ace bandages.
8	Hilltop Therapy	Va. BEACH, VA.	VA	USA
8	Vanderbilt Univ. Stalworth Rehab	Nashville	TN	USA	I love that this clinic has taught me self maintenance of my lymphedema and has empowered me to take care of myself!
8	Shriners	St.Louis	MO	USA	I liked how they help me diagnos what I had, but they made me feel like I was not improtant. One of the RN's said"well we have more important things, like ppl just getting out of surgery, so thats why the doctor is late."
8	Shriners	St.Louis	mo	USA	I liked how they help me diagnos what I had, but they made me feel like I was not improtant. One of the RN's said"well we have more important things, like ppl just getting out of surgery, so thats why the doctor is late."
8	Holzer Clinic Karen Meadows	Gallipolis			She is the only LANA certified therapist I have seen, so I don't have anything to compare it with. My custom hose don't fit and I don't know what to do.
8	Total Health Care	Westbury	NY	USA	I have found them to be the first place I've gotten real help for my Lymphedema. They did a 28 day program including manual drainage, wrapping and exercise. They then taught self wrapping, stockings and self-massage to continue therepy. If found success for the first time. I use the Lympha-press before but it just push the fluid up to go back down. The manual drainage actually seem to help move the fluid out.
8	Phoenix Baptist Hospital	Phoenix	AZ	USA	They had a wonderful therapist but she left & I was not impressed with the other therapist. They were very nice to me but it was over a 6 month period to get the arm to a normal size. I think that was to long.
8	St. Barnabas	Livingston	NJ	USA	got good information on lymphedema; mld therapy and taught to me; quality of therapists varied
8	HealthSouth Greater Pitt	Monroeville	Pa	USA	This program is very comprehensive and can include aquatics if needed with a of great benefit to the patient.
8	OPT, INC	Richmond	VA	USA
8	Ramsey physical therapy	St. paul	MN	USA	The therapist was trained in a european form of massage. They taught me how to bandage as well as taught me bhow to do the massage myself.
8	Surburban Hospital Physical Therapy	Louisville	Ky	USA
8	Desert Samaritan Hospital	Mesa	AZ	USA	See above. The therapists seem knowlegable and are very nice. Treatment is always on time. There is a 2 to 3 month waiting period to begin treatment. There are very inadequate numbers of treatment facilities and qualified therapists in the Phoenix area. I am trying to persuade other facilities to start or expand treatment. I am a nurse, and a community activist (can you tell?)
8	summa's lymphedema center	akron	OH	USA	This is the only clinic I have ever been to,so I don't have anything to compare it with. I feel that I was treated well there. I only had to go for three weeks every day. they do have a support group that meets every other month at the hospital.
8	Florida Hospital Rehab Ctr	Lake Mary	FL	USA	The OT who provides the lymphatic drainage massage is very good to work with. We do not know exactly how long I have had this condition, because it started out mildly and then about 4 years ago got much worse. I have been to many different doctors, but none of them can seem to find the cause. I have the lymphadema throughout my entire body. The OT has been very encouraging and we have worked together on nearly a daily basis. She has taught me excercises, but we have not done any bandaging as my torso is so blocked, she feels that the bandaging will not do much good. Also, the insurance company only allows 20 treatments, but the OT is going to write to them for me to get thm to allow more as the progress is very slow, but it is helping.
8	Crystal Coast Therapy Services	New Bern	NC	USA	Therapist Tracie Sparks, MSPT, does a very good job. I have stage 3 lymphedema in my right leg and bandaging is a challenge, but she can handle it all. I would recommend this therapist to anyone.
8	lymphedema&woundcareclinicofaustin	austin	TX	USA	they were very halpful and were very comforting. the treatment does work.
8	Reflexologist	Kent	Kent	United Kingdom
8	Lympedema Therapy	Woodbury	NY	USA	The actual therapy experience was very positive. Staff wonderful! Results were more than I ever expected.Wish I knew about the place earlier in my life.
8	ST. THOMAS LYMPHEDEMA CLINIC	Nashville	TN	USA	Laiks therapist was great. We learned the lymphdrainage treatment and wrap.Childrens Special Services helped us pay for that. When I got my insurance and called to talk to someone about coverage on Lymphedema no one has enough knowledge about it to know what is important for the patient. Compression sleeves for my child has to be custom made, very exspensive. I have called several medical suppliers and these sleeves are not considered in the contract with the insurance company. I cannot even find a docter that specializes in this that really is concerned for my child instead of money. Laik not only has it in his arms, but also in his genitals. What do you do there ? I have found out I have to fight this battle myself.
8	ST. THOMAS LYMPHEDEMA CLINIC	Nashville	TN	USA	Laiks therapist was great. We learned the lymphdrainage treatment and wrap.Childrens Special Services helped us pay for that. When I got my insurance and called to talk to someone about coverage on Lymphedema no one has enough knowledge about it to know what is important for the patient. Compression sleeves for my child has to be custom made, very exspensive. I have called several medical suppliers and these sleeves are not considered in the contract with the insurance company. I cannot even find a docter that specializes in this that really is concerned for my child instead of money. Laik not only has it in his arms, but also in his genitals. What do you do there ? I have found out I have to fight this battle myself.
8	ST. THOMAS LYMPHEDEMA CLINIC	Nashville	TN	USA	Laiks therapist was great. We learned the lymphdrainage treatment and wrap.Childrens Special Services helped us pay for that. When I got my insurance and called to talk to someone about coverage on Lymphedema no one has enough knowledge about it to know what is important for the patient. Compression sleeves for my child has to be custom made, very exspensive. I have called several medical suppliers and these sleeves are not considered in the contract with the insurance company. I cannot even find a docter that specializes in this that really is concerned for my child instead of money. Laik not only has it in his arms, but also in his genitals. What do you do there ? I have found out I have to fight this battle myself.
8	ST. THOMAS LYMPHEDEMA CLINIC	Nashville	TN	USA	Laiks therapist was great. We learned the lymphdrainage treatment and wrap.Childrens Special Services helped us pay for that. When I got my insurance and called to talk to someone about coverage on Lymphedema no one has enough knowledge about it to know what is important for the patient. Compression sleeves for my child has to be custom made, very exspensive. I have called several medical suppliers and these sleeves are not considered in the contract with the insurance company. I cannot even find a docter that specializes in this that really is concerned for my child instead of money. Laik not only has it in his arms, but also in his genitals. What do you do there ? I have found out I have to fight this battle myself.
8	Retreat Hospital	Richmond	VA	USA
8	Mac Gregor Medical, greenbriar	houston	TX	USA	the doctors at this clinic were very patient
8	Lymphedema Therapy	Woodbury	NY	USA
8	lymphedema in tulsa ok 61 st s yale	??		USA	they wrap my arm with alot of thing. i cant move it. it made it hunt more. it did not help. i have severe pain in my hand arm back and now my legs as pain in back of my knees.
8	Phoenix Baptist Hospital	Phoenix	AZ	USA	Therapist was very good but left for a better paying job. Hospital did not bill timely & still has not paid all of the therapy charges. The hospital has been very difficult to deal with.
8	LYMPHADEMA RE/FLEX CLINIC, ST. FRANCIS HOSPITAL	TULSA	OK	USA	They have helped alot and addressed most of my concerns. I have aching and pain and heaviness and pressure and fatique in my arm and they seem to think that is rare. Do you have any that have these symptoms too or am I odd?? Cindi
8	Good Samaritan Hospital	Portland	OR	USA	I was treated at the Cancer Center, although my lymphedema is primary. I was treated with a great deal of respect and dignity. The therapist was very knowledgeable, although the extent of the swelling in my abdomen is so great, it is very difficult to find anyone who can create or develop any sort of supportive compression garment. She has been communicating with the clinic in Seattle and other network sources. I would strongly recommend "Good Sam" for anyone in the Portland area needing therapy.
8	memorial hos	hallandale			The people there were very freindly and hopeful about the progress of ny condition
8	Siskin Rehab	Chattanooga	TN	USA	For being a fairly new clinic, the therapists are very wellimformed,dedicated and willing to keep up on the lastest techniques for maunual massage. I have ben going to thisclinic for 2 months now and have been very pleased.
8	Olympic Physical Therapy	Seattle	WA	USA	Excellent information and treatment program provided by three trained physical therapists. However, difficult to obtain appointment due to very hign patient load. Clinic is a physical therapy clinic and does not specialze in lymphedema. No MD present.
8	Pocono Medical Center - Rehab	E. Stroudsburg	PA	USA	Excellent therapist.
8	Hands on Physical Therapy	Cheyenne	Wy	USA	Very informed and helpful
8	MSU Lymphedema Clinic	East Lansing	MI	USA	I had very good care and am continuing with good follow-up. I order my sleeve and glove through the clinic. They have been very helpful. I also am part of a support group that meets at the clinic once a month. The therapists are caring and knowledgeable.
8	Regions Physical Therapy	St. Paul	MN	USA	The clinic was great. The therapist was very knowledgeable about MLD. I believe she followed accepted treatment procedures. Going through MLD was very difficult. I felt that more support could have been offerred for patients. I also did not agree with my therapist when she did not agree with me that Lymphedema causes pain. For that simple reason alone, I would not go back. Finally, the $15 a visit co-pays really add up when you are recieving MLD.This needs to be changed!
8	Health South	Memphis	Tn	USA	The treatment was very good. The problem I had was that I was never billed. I went for about 8 months until someone in my area was trained in MLD. Two years after being discharged I received a hugh bill from a collection agency with the threat of being sued for non payment. I HAD NEVER RECEIVED A BILL FROM HEALTH SOUTH!!!
8	HealthSouth	Plano	TX	USA	I was treated courteously and trained to take over much of my own care. Everything was explained fully. My only concern was the expense of the bandages and other materials that weren't used as frugally as possible. Everything was very high cost in my opinion.
8	burns clinic of petoskey	petoskey	MI	USA	i was diagnosed by a specialist after my family doctor set up the appointment. from there i was sent immediatly to physical therapy department in the hospital for light manual massage starting from the groin and then massaging from the foot to the upper thigh - soft massage and then tightly wrapped with ace like bandaged at first to the knees bilaterally and after a few return visits up to the upper thigh. daily x 2 weeks then on my own. i am on my own x 2 days concerned regarding no progress and decress in progress. awaiting knee high form fitting hose
8	BARNES REHAB and FITNESS	??
8	Baptist east rehabilitation center	Germantown	Tn	USA	They look carefully, listen, work hard on the massage and the gradient compression machine. They are kind, they know it hurts, they are now advising me to talk to a heart specialist..
8	ST. FRANCIS hOSPITAL	Topeka	Kansas	USA	lYNNE, THE THERAPIST IS VERY SKILLED AND KNOWS WHAT SHE IS DOING.
8	Foxcare	Oneonta	NY	USA	Doris Alton is the Lymph drainage massage therapist and is excellent but is now leaving for a new position in NC - I have no idea where to go, locally, now.
8	DHMC	Lebanon	NH	USA	I saw two plastic surgeons, one general surgeon, many interns and nurse practitioners and no one knew why my abdoman was so swollen. I had it drained several times and tetracycline injected into it. I had surgery for a hyrnia. I finally went to the pain clinic and the physician diagnosed it as lyphedema. I have been to three physical therapists. The therapy helps some but not very much. I would like to talk to someone who has this problem
8	Rehabliatation Clinic, University of Minnesota	Minneapolis	MN	USA
8	Bluegrass Outpatient	Bowling Green	KY	USA	Very supportive, encouraging. Explain things in great detail
8	John T Vucurevich Cancer Care Institute	Rapid City	SD	USA	Rating? I assume 1 is least favorable, 10 is most favorable?
8	aurora	san francisco	ca	USA	was given alot of hope----but after several treatments, they were unable to help
8	Lawnwood Regional Med. Center	Fort Pierce	FL	USA	I would like to thank my therapist Tiffany, Sharon, & Carmen. They took excellent care of me.
8	Lawnwood Regional Med. Center	Fort Pierce	FL	USA	I would like to thank my therapist Tiffany, Sharon, & Carmen. They took excellent care of me.
8	Lawnwood Regional Med. Center	Fort Pierce	FL	USA	I would like to thank my therapist Tiffany, Sharon, & Carmen. They took excellent care of me.
8	peace health medical center	eugene	or	USA
8	peace health medical center	eugene	or	USA
8	Lymphatic Therapy Services, Inc.	Las Vegas	NV	USA	This is a professionally operated establishment. The Owner and the Staff are: OTR/L, CLT-LANA. My Specific Therapist is Vodder taught in Austria. Treatment is clean, comfortable, quiet, and dignified.
8	Lymphatic Therapy Services, Inc.	Las Vegas	NV	USA	This is a professionally operated establishment. The Owner and the Staff are: OTR/L, CLT-LANA. My Specific Therapist is Vodder taught in Austria. Treatment is clean, comfortable, quiet, and dignified.
7	SPECIALIZED PHYSICAL THERAPY, ADVENTIST MEDICAL CENTER	PORTLAND	OR	USA	I HAVE 25 POUNDS OF FLUID IN MY UPPER LEFT ARM. I RECEIVED MASSAGE TO MOVE THE FLUID AND THEN THE THERAPIST TRIED WRAPPING MY ARM. BECAUSE IT STARTED AT MY ELBOW AND WENT UP TO MY SHOULDER, NO WRAPPING WOULD STAY ON MY ARM. IT KEPT FALLING OFF. I WAS THEN TOLD THEY COULD NOT DO ANYTHING TO HELP AND SUGGESTED THE SURGERY.
7	Health South	Memp. TN	Shelby	USA	In Memphis there are only 3 people that massage & wrap..1 full time male at our Downtown Methodist Hospital..2 part time females at Health South that were PT\'s & trained to be OP\'s to qualify to treat this condition. Only 3...causes a waiting list,which I worry about. Apparantly, Our Community needs more \
7	copper health	camden			it was veryinteresting they shared a lot of information with me
7	copper health	camden			it was veryinteresting they shared a lot of information with me
7	Lymphedema clinic of Salt Lake City	Salt Lake City	UT	USA	Jenny was a good therapist and the clinic was able to help me even with my obesity which is extreme. The only draw back to this clinic is that there is only one specialist who works there.
7	colville med, center	colville	wa	USA
7	St Anthony Hospital	Oklahoma City	OK	USA	Part of the radiation oncology department of the hospital; one therapist who is very good. BUT they give her no funding to educate patients; and the equipment is very basic (not even a therapy bed--using an old exam table for MLD)
7	Stanford Lymphedema Clinic	Palo Alto	CA	USA	A stent was placed in the significant limb being the right arm. Then I was to have manual drainage therapy, but State Fund stopped it by denying the claim after they set me up with a pump that doesn't help the persistent edema, THat by the way has spread to legs and other arm due to the poor circulation in character.
7	Baylliss Rehab. Center, Beebe Medical Center	Lewes	DE	USA	It is a new program with the Medical centers PT Dept.. They have one therapist trained in MLD and wraps. She keeps on getting better and is very interested,very caring and well supported by her dept.
7	Englewood Hospital	Englewood	NJ	USA	I had a rough time because I got the Lymphedema the third week of radiation and the more radiation I got the worst my arm got to terrible pain- the treatment at first helped but during the radiation the pain was too serve to do anything except rap it in bandages. I ended up with a frozen shoulder and I had therapy for almost the whole year after returning to work and having to go to therapy three times a week after work. The therapist were really great except there wasn't enough information as far as I was concerned. I guess because there is no cure and my lymph nodes were clear of any cancer, so if I didn't have 16 nodes removed, I think I would never have ended up with the Lymphedema.
7	Health South Rehab	Birmingham	AL	USA	The staff were very attentive, knowledgable, efficient, and caring. They recommended 6 weeks of therapy using a compresion machine, bandages, and compression stockings. However, this was an impossibility for me as they said I would need to use the compression machine about 23 out of 24 hours a day. That was not a workable solution for me.
7	HealthSouth	Huntsville	AL	USA	The treatment itself was quite good and the MLD therapist was good at her job, but I think her bedside manner was terrible. I don't think any patient should ever be told they would "never" be able to do something physical.
7	Breast Cancer Physical Therapy, cherry hil, N J & Phila	Philadelphia	Pa	USA	I received my best form of treatment at this facilit; but, unfortunately while I was going for treatment, they had a problem with their staff. After being treated for around two months, I was told that I couldn't get another appt. until the following month. I asked, "What am I supposed to do until then?". They just said they were sorry. I never called back because I was scheduled for Breast Reconstruction the following month. Of course, they never called to see how I was doing. Sorry I wrote such a long answer.
7	Horton Hospital rehabilitation	Middletown	NY	USA	I liked the therapist very much. She has been the business for a while and is not as rigid as St. Anthonys. I feel she took my feelings into account and did her best to give me feel better.
7	Englewood Hospital	Englewood	NJ	USA	This is not a Clinic. I had to go to therapy while I was getting the radiation every day. I hated the way they told me I had Lymphedema because I thought I was just going to get some therapy because I had pain in my arm. This was cruel!!!!!!!!!
7	Parkview Hospital	Ft Wayne	IN	USA	The massage therapy was done by a cert. therapist. This is billed thru Parkview Hospital but was a separate office. I went thru two weeks of massage therapy and learned how to wrap the
7	Olympic Physical Therapy	Everett	Wa	USA	There was only one therapist at this particular clinic who had been trained in MLD, and she had not had much experience. She was very professional, and appeared to understand the concepts (I am a physical therapist myself, and had done a lot of research), but she just needed more "hands on" experience.
7	Stanford	Palo Alto	ca	USA	I visited Stanford a few years ago. The staff is knowledgable and friendly.
7	Ginger- K Center	San Jose	CA	USA	Good CDP and very big on cleanliness!! Also good on educating patient.
7	Turning Point Rehab, St. Mary Hospital	Walla Walla	WA	USA	This is the only clinic I know about. Overall they seem to get the job done. Have had problems getting proper garmets for me. Will try custom now. They led me astray on insurance, telling me Major Medical would pay and it didn't. Trying to cut a few corners because of limits set by Ins. Overall not bad and it is the only choice I have.
7	the lymphedema clinic	pittsburgh	pa	USA	the clinic was friendly and knowledgeable. They helped you feel comfortable and relaxed. the only thing i felt was wrong was i had not teaching regarding mld and post therapy management.
7	Watertown Memorial Hospital	Watertown	WI	USA	Dean Care would longer pay for treatment because they were not certified for lymphedema treatment under their plan.
7	Genesis center	chattanooga	TN	USA
7	Unity Hospital	Fridley			I felt as if they rushed me in and out I felt as
7	memorial hospital	yakima	wa	USA	i go here for my massage theapy. one girl is good and i feel she does good. she has no contact with my docter and he says she's is wrong on alot of things. its very frustrating
7	St. Joesph Hospital	Eureka	CA	USA	Couldnt label my condition because they didnt know what it was
7	St Thomas Hospital	Akron	Oh	USA	The pt\'s very helpful and informative however, the Dr is only in once a week for a few hours and it is impossible to get any information from him. I have been trying for over a month to speak to him without any luck. I would not recommend going to this particular doctor (although the pt\'s were wonderful)
7	McKenzie/Willamette Hospital P/T dept	Springfield	OR	USA	JJ Habrat, PT was my therapist. He was the onlyperson in the whole Eugene/Springfield, OR, area who had the \
7	Burbank Hospital	Fitchburg	MA	USA	The therapist was just getting into this. It is hard to find help for this around here.
6	Tidewater Physical Theraphy	??	VA	USA	The treatment was very helpful, although the edema has gotten worse and has spread to my right leg as well as the left. The clinic gave me some very helpful ideas and gagnets to help try to make things easier.
6	Tidewater Physical Theraphy	??	VA	USA	The treatment was very helpful, although the edema has gotten worse and has spread to my right leg as well as the left. The clinic gave me some very helpful ideas and gagnets to help try to make things easier.
6	Provena St. Joseph Sports Rehabilitation and Physical Therapy	Joliet	IL	USA	I have had to put my foot down so that they do not spend an hour talking about improving my condition. Since my insurance is not covering this, it is too expensive ($220-$250 per session) just to listent to someone talk and give me some handouts. I also don't like the fact that they don't consider a patient's lifestyle. I have a full-time and a part-time job. Never once did the therapist consider the fact that, when the bandages get tight and need to be taken off and rewrapped, I might not be able to do it. The first time she wrapped my leg, it got so tight (about 8 hours later) that I had to unwrap it behind the counter in a retail store! I was angry that she never once considered the fact that I might not be able to rewrap the leg. (We're a small store so we only have 1 person working at a time and we do not have a restroom that would allow me to cleanly and safely rewrap.) If I had known that I would not have gone back for a second appt. and wasted over $200 until they had ordered a Leg Assist for me.
6	St. Benedicts Hospice	??	SUNDERLAND	United Kingdom
6	Dr. Taran	Mohali			They did not care for the patients
6	Tuomey rehab clinic	sumter	sc	USA	Services didn't help. Was inconveince to my work schedule.
6	Mid-Atlantic Lymphedema Clinic	Ellicott City	MD	USA	I only attended one clinic. My hope were very high when I first started treatment. I was very disappointed with the results.
6	LYMPHADEMAA THERAPY	Long Island	NY	USA	Staff seemed efficient, but I believe that my condition worsened because I was bandaged too tightly one afternoon. I could not get a sleeve/glove combination that worked for me; possibly because my condition had persisted too many years before I learned of and tried the therapy.
6	Rehoboth McKinley Cibola Clinic	Gallup	NM	USA	Physicians do not seem to understand lymphedema - will not send me to physical therapy. They did order special stockings, but they did not fit and I could not wear them.
6	Health South	Eugene	OR	USA	Physical therapist had just attended a seminar in Florida, where he learned the bandaging technique and self-manual drainage, which he taught to me. It was supposed to be done every day, was time-consuming, & really not effective. He gave me xeroxed literature.
6	Sister Kinny Institute, Mercy Hospital Coon Rapids	Coon Rapids			I have one hour sessions and most of the time is measuring my legs. I have only had two sessions, but I feel it is a waste of time. To wrap your leg in several layers and expect the patient to do it at home is rediculous.
6	wolstanton doctors surgery	wolstanton	wolstanton	United Kingdom	ok
6	HealthSouth	Toms River	NJ	USA	The therapist was excellent. I did go for therapy 5 days a week which the clinic really did not like. My doctor did prescribe that therapy and my therapist fought for me to continue -- I went for a total of 3 months, 5 days a week and the results were excellent! Unfortunately, I left the area for the winter months and did not continue. I don't think HealthSouth would have allowed me to continue even if I had stayed in the area.
6	Wesley Rehabilitation Hospital	Wichita	KS	USA	I have also used a certified massage therapist that does the massage out of her home. She did a wonderful job, however insurance did not pay for it. Every visit was out of pocket.
6	University Of Utah Medical Ctr	Salt Lake City	ut	USA	Fast track program - only four weeks with 16 visits for the program. Busy clinic, but very good on wound care while going through the program.
6	Lymphedema Clinic Of Seattle	Seattle	Wa	USA	I was told this was the only clinic in the western states that specializes in lymphedema treatment, and I just happened to work in the same building. I was recommended from a co-worker, and was seen very promptly. I went thru a 5 day course to learn how to do manual massage and bandaging. They do have support groups to, although I do not attend them. This is the only clinic I have been to for care other than a hospital.
6	Lymphedema Services, NY	New York	NY	USA	I've been there twice. The first time, the results were dramatic. I was there a month and the size of my leg was reduced to almost normal. The therapists were excellent. The second time, 4 years later, I had gained some weight and I had no change in two weeks of therapy twice a day and bandaging all day long. I know that my weight affected the results the second time but I also know that the therapist I had the second time was not as caring or intent on results as the first one.
6	mulikin medical center	hawthrone	ca	USA	I HAVE NOT HAD ANY BAD EXPERIENCE. THE ONLY PROBLEM IS NOTHING TO HELP WITH THIS LYMPHEDEMA I
6	kwc clinic	kilwinning	kilwinning	scotland	good and bad
6	Sharp	Rancho Bernardo	ca	USA
6	mater hospital	Brisbane	Queensland	Australia	What I would like to know is, is ther many more out ther who were born with no lymphatics in their legs as I was. And does any one know the longest duration of flight time before I might expect to suffer any problems. You help would be invaluable, thank you. Sincerely yours, Helen Wilson
5	St. Thomas Hospital	Akron	OH	USA	Not happy with their attitude toward my asking questions. Brushed off inquiries by telling me to make my own decisions. How can you make an intelligent decision without having facts. I won't go back even though I have had some bad months.
5	North Broward Medical Cener	Pompano Beach	FL	USA
5	SCARBOROUGH GENERAL HOSPITAL	SCARBOROUGH	ONT	Canada	I HAD LYMPHEDEMA DRAINAGE FOR 2 WEEKS HAD ITBANDAGED AND STOCKING TO FITMY LEG STILL SWELLS AND IS GETTING BIGGERPROGRESSED TO MY THIGH AND BOTTOM
5	Sunset Hospital	Las Vegas	NV	USA
5	Hand Rehabilitation Center	Thousand Oaks	CA	USA	I have just started to go. I haven't been there enough to evaluate yet. I am pretty scared at this point, because the lymphedema seems to be increasing. The massage therapist seems knowledgable and has treated others with good results.
5	CHRISTANNA HOSPITAL	NEWARK	DE	NEWCASTLE	THIS IS MY FIST TIME NOT REALLY SURE WHAT I SHOULD EXPECTLIKE TO KNOW ANOUT CLINIC NEAR ME
5	I'm unsure of the name	Norfolk	NE	USA	The nurse that did the MLD used scare tactics because she wanted me to know how serious lymphedema was. She made it sound like a death sentence. She's no longer working at this clinic. She ordered an Elvarex sleeve and glove for the lymphedema of my right arm. It was so tight at first that it made the tips of my fingers turn blue and then white. I finally got it stretched out so that it fit o.k.
5	Sitran Rehabilitation	Utica	NY	USA	They don\'t know how yto treat genital lymphedema.
5	South Jersey Hospital Assoc.	Vineland	NJ	USA	A very good message (MLD), but they use the Vodder method? I think that's what it's called. My arm got worse with their form of wrapping.
5	Lymphamtic Thearpy Services of Nevada	Las Vegas	Nv	USA	I'm rating a 5 because i yet to start treatmnet as of this day,stalling by insurance company and there has NEVER been any treatment til now
5	joyners	Beaufort
5	St Clare Medical Center	Crawfordsville	IN	USA	Very limited knowledge
5	St.Anthonys Physical Rehabilation	Goshen	NY	USA	I felt that the therapist, though trained in the MLD/CDT methods was cold and he upset me greatly when I first went to there. the first thing he said to my was "You have it, there is no cure and it's only going to get worse. This put my in a very deep depression for months. I went through the 4 weeks of continuously wraped in the compression bandages and the MLD during the week. This procedure took approx. 3 hours a day so I had no choice than to stop work and go on disability. He had a very grim outlook and was not comforting at all.
5	Lymphedema Services, Inc.	Princeton	NJ	USA	Outpatient -First visit for 30 days
5	Lyphedema Clinic.@ LAH	Latrobe	Pa	USA	Dr was not able to help me....because of the severe pain
5	Universery Medical Clinic	Omaha	Ne	USA	only concern was old blood clot
5	The Therapy Center	Knoxville	TN	USA	Personnel were very nice, but treatment was unsuccessful.
5	MCV Clinic Medical College of VA,	??	VA	USA	therapy went well but when it came time for getting the compression garments that was when the ball was dropped and that was 5 months ago and I still do not have them. ok? My insurance denied the reed sleve as being investigational and nothing eles was done from there.
5	Dean Physical Rehabilitation	Madison	WI	USA	I only went once because I had already gone to Watertown and the lymphedema was under control when I went to the first appointment and the therapist did not feel that I needed any treatment.
5	Grant-Riverside Northeast	Columbus	OH	USA	In retrospect, I wish I'd gone somewhere else. The therapist I saw was very set in her ways and rather rigid in her thinking. If I asked a direct question, she would respond, but never volunteered anything about other treatment options, etc. I am much more knowledgable now, but back then I didn't know much about what to ask, but if I ever did this again I'd want to work with someone more open-minded. Also, once I left my program, I had one follow-up appt. a month later, and then was left totally on my own. It seems that follow-up beyond one month should be the norm since this is a chronic disease.
5	peekskill hospital	peekskill	ny	USA
5	S. Texas Cancer Specialists	Corpus Christi	tx	USA	Do not seem to want to deal with the Edema
5	watertown Memorial Hospital	Watertown	WI	USA	The therapist had not completed her certification. I went because it was convenient and I was able to get in quickly. The therepist was very good but lacked enough training in wrapping and compression therapy. I would not go again.
5	Comunity medical Lymphedema clinic	Fresno	Ca	USA	They did not follow up on anything for me.
5	Midwest	Dearborn	MI	USA	Drs. are overbooked and a patient has to wait for almost 2 hours to be seen.
5	Shriner\'s	Houston	TX	USA	The orthopedic doctor there offers little info on lyphedema and only suggests using a compression stocking. Donald has had three cases of cellulitus in one year and there seems to be no one to help us when we mention trying massage techniques etc.
4	Tiffany Sanderson	Tucson	Az	USA	She is the only PT I have seen and I wish she would explore other options for treatment ie reidsleeve and legassist. Over all she is a good therapist
4	St Elizabeth Hospital	Appleton	WI	USA	I've gone here several days a week just during summer months when I'm not in college for the past two summers. The first summer treatment really helped because my leg was really out of control. This last summer didn't really do much besides waste my time. It feels really good on my leg most of the time too.
4	St Elizabeth Hospital	Appleton	WI	USA	I've gone here several days a week just during summer months when I'm not in college for the past two summers. The first summer treatment really helped because my leg was really out of control. This last summer didn't really do much besides waste my time. It feels really good on my leg most of the time too.
4	florida hospital	Orlando	FL	USA	They are very new to treating lymphedema
4	David Grant Medical Center (USAF) Travis Air Force Base	Fairfield	CA	USA	I was diagnose with Lympedema Dec 99. Pnematic Pump during Jan.00 Manual Theapy Feb 00. Surgery Jun 00. Lymphedema is worst. There is a Gelatious Tumor about 3-5 c. resting on the Fumual vein right thigh. Very painfull. Very discomfort. DR. can't seem to come up with a plan. This lymphedem is secondary do to Cancer called Pseudomyxoma Peritonei of the Appendix. Orginally started May 93. Current clinic indicates they can not do anything now. I have low red blood cell, sometime weak and cold. I am tired. I've lost 6 month of wages and nobody seems to be able to up me.
4	David Grant Medical Center (USAF) Travis Air Force Base	Fairfield	CA	USA	I was diagnose with Lympedema Dec 99. Pnematic Pump during Jan.00 Manual Theapy Feb 00. Surgery Jun 00. Lymphedema is worst. There is a Gelatious Tumor about 3-5 c. resting on the Fumual vein right thigh. Very painfull. Very discomfort. DR. can't seem to come up with a plan. This lymphedem is secondary do to Cancer called Pseudomyxoma Peritonei of the Appendix. Orginally started May 93. Current clinic indicates they can not do anything now. I have low red blood cell, sometime weak and cold. I am tired. I've lost 6 month of wages and nobody seems to be able to up me.
4	Monifore Hosp.	Bronx	ny	USA	This Hospital does not help much with my leg they help get ace bandages and cream for my leg (I have ulcers too!) and the only place that can help me with my problem, they don't take my insurance (Lerner Svcs)so I don't know what to do.
4	Parkview PT	Fort Wayne	IN	US	Complete training and up-to-date information. And short turnaround time for info.
3	Cardiovascular Clinic	??		Puerto Rico
3	Sacred Heart, Willamette St in Eugene	Eugene	OR	USA	It seemed that the therapist had no real working knowledge of Lymphedema.....and the treatments left much to be desired.....so after 2 times in, we quit.
3	elkhart generall	??
3	Montgomery Vascular Institute, Baptist South Hospital	Montgomery	AL	USA	The doctor that I saw only prescribed me with support stockings. He told me that there was no cure, however he didn't even mention that I could have the fluid drained. Please get me help.
3	Lahey Clinic	Boston	Mass.	USA
3	cardiology clinic of muskogee	muskogee	ok	USA	I continue to get worse symptoms
3	Kaiser	Portland	OR	USA	It was a newely established program of MLD.
3	Lymphedema Therapy (long Island) Dr Borris	Woodbury Ny, usa			After spending 4 weeks there we felt as though this clinic was just money hungry and did not really care as much for the patient as they did the insurance co-pays. Charged us a 15 a day copay after the insurance co paid almost 10.000.00 for the treatment. Plus charged us 300.00 each for Jobst stocking that are only about 150.00 a peice. Our son has asthma and was sick while we were down there. Dr.Borris is also a pediatrician ( so he claimes)We took him for a visit because he was so sick and wheezy, Dr Borris
3	Riverview Physical Therapy	Noblesville			They refuse to order compression garments for me.
3	Individual -- NOT at clinic	??	CO	USA	This was NOT a clinic. An individual certified and trained in Florida performed MLD treatments on my lymphedema Dec. 98. My husband and I continued the treatments faithfully through 1999 only to become disolussioned and frustrated with the lack of positive progress. Six hours a day spent attempting to gain control of the swelling was far too much time spent for the lack of satisfactory results. Time spent in this manner is not LIVING.
3	chronic oedema	aberdeen		scotland	This is national health and very busy so I could not possibly ask to have bandaging or mld treatment as I would be depriving others whose condition is worse
3	Sumner Medical Regional Rehab	Gallatin	TN	USA	Not very much help, give papers and set you free, until next time
2	KU MEDICAL CENTER - PHYSICAL THERAPY	KANSAS CITY	KS	USA	THE THERAPIST HAD GONE THROUGH A WEEK LONG SEMINAR. I KNEW MORE ABOUT THE THERAPY THAN THEY. NO MORE. I AM BETTER AT FINDING WHAT IS BEST TREATMENT FOR ME. IT IS LIKE ANY HEALTH PROBLEM. YOU GO TO A SURGEON HE WANTS TO OPERATE, A NUTRITIONALIST WILL FOCUS ON DIET, AND AN INTERNIST - MEDICINE. AFTER WE HAVE SPENT ALL OUR RESOURCES WE ARE NO BETTER THAN WHEN WE STARTED. NO I WILL PLAN A DIFFERENT ROUTE FOR MYSELF TO SEE HOW IT WORKS. SEE MISCELLANEOUS SECTION.
2	Westmead Hospital	Westmead	NSW	Australia	My Therapist took one look at my legs and said she wouldn't even bother with massage. Consequently I had my legs bandaged for a period of 6 weeks. Whilst this did reduce swelling, there was never a mention of any other sort of therapy and I was not told any of the do,s and dont,s. Very disappointing.
2	Olympic Sports Clinic	Seattle	Wa	USA	They tried wrapping my leg for two weeks which did not do anything for me. also they did some manual lymph drainage but it was only about three times and not consistant. I had to stop because I was just wasting my money.
2	shriner's hosp	lexington	ky	USA
2	Healthsouth (not a lymphedema clinic- have a PT with 2 weeks of training and no support)	Morgantown	WV	USA	It was only worth my time to go to this place
2	Dr Kurt Warkenthein	Naperville	IL	USA	I do not recommend. His long term plan consisted solely of diuretics (unhelpful) and elevation of my legs.
1	Ann Frost	Honolulu	HI	USA	I have lymphedema in both arms from breast cancer. Ann is compassionate & has a warm personality that includes making you feel there is hope.
1	Cardinal Glennon Hosp	St. Louis	MO	USA
1	Memorial Hospital	South Bend	Indiana	USA	Basically, they had just began the program when I went through it. They did not give me any informtation to take home with me and did no followup. It cost $10,000. When I went back years later to see if anything else could be done, they said no. They said the program had failed me.
1	Iowa Methodist Medical Center	Des Moines	IA	USA
1	Mayo Clinic	Jacksonville	FL	USA	Excellent but it was difficult to find out they had a licensed therapist available. I understand they are trying to cetify more therapists. There are no certified lymphedema therapists in St Augustine. I have to drive 50 miles.
1	d.t.watson rehab hospital	pitts.	pa	USA	did NOT properly explain or follow prudent and competent care and follow up.used pressure compression machine with no preliminary manual massage conditioning or direction whatso ever causing a two year lymph stagnation in lower extremities toget pushed abruptly through the already compromised lymph system resulting in an abrupt and dangerous rise in my blood pressure during this process,and a major discernible permanent change in my upper body within hours and days described best as a bloated "beer belly"/bloated pregnant look later diagnosed as lymphedema "spreading phnonema".clinical girth measuremnts already compiled were actually partially altered by the staff after the fact suggesting instead that the medical personel "must have made a mistake in their original measurements"(and thats why the measuremts from one appointment to the next had appeared to increase so dramatically). it appears in retrospect that absolutely their use of a compression machine made this condition worse!!!! certainly they did NOt treatment in a proper or professional way. the head of that dept.has since retired although i do not know the corresponding status of her understudy and apparent only employee at the time(a nurse who seemed seriously inexperienced and peripheral in her own working knowlege and expertise of this complex disease(sadly for me ,she was the person who administered and operated this important pressure sleeve machine.it would appear that this incompetence forced polluted stagnated lymph fluid into other parts of my system and probably blew a bunch of delicate membranes and one way valves along the way.i have not returned there,and believe that dept.may no longer exist.my experience there was in 1997.
1	Midas Touch Institute 7800 S W 57th Ave suite 209 Miami, Fl	Miami	FL	USA	The Therapy was very poor, only they massages my arm, and after two weeks therapy they sell me the sleeve and glove $197.00 and were a wrong size or the measures was wrong. For my opinion Ana Maria Mendieta is more busines girl and NOT a professional.
1	PENN Therapy	Mt. Holly	NJ	USA
1	Tareq	??		Saudia Arabia
1	This was Doctor at Westmead Hosp	Westmead	NSW	Australia	I chose one as a rating, simply because you haven,t got a zero. This Doctor was my first port of call and advised that by stripping the veins in both legs. he could guarantee the swelling would not worsen.
1	Therapy Concepts Treatment Center	Lenexa	KS	USA	The MLD was fine; the bandaging ranged from substandard to good; the billing and related paperwork stuff was unbelievably unprofessional. The woman who runs the place has no integrity; I wouldn't go back if they were the last clinic on the face of the earth (all but one of the competent Vodder-trained MLD therapists have fled the establishment, which ought to say something; many of the long-standing patients have done the same).
1	river edge theraphy	Great Falls	Mt	USA
1	Huguley Hospital	Fort Worth	TX	USA	The therapist did not know how to treat my condition. He turned the pump up to high and positioned my leg at a 90 degree angle. I had immediate rectal bleeding.
1	SeaPines Rehabilitation	Merritt Island	fl	USA	the therapist showed me her certification in MLD, but she did not seem expereinced in this therapy, she had NO ideas for my LE, cuz of location of the LE. So I have to wrap daily for the rest of my life.
1	Chestnut Hill REhabilitation Hosp.	wyndmoor	pa	USA
1	Optima Therapy	Lincolnton	NC	USA