Clinics / Hospitals / Therapists
For simplicity, the questionnaire uses the term "clinic" to refer to any clinic, hospital, therapist or caregiving person or institution. This convention is used here as well.
Some clinics were not given a rating when they were submitted. These are near the bottom of the list in a separate section.
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| Name | City | State/Province | Country | Extra Information | |
| health partners | st.paul | mn | USA | Id like to find out some info on physical activities that are most suggested to keep fit when you have this condition. | |
| hyperbaric unit at hermann hospital | houston | tx | USA | clinic opens at 7 am, and closes 2:30 pm. therapists are very helpful and informative. | |
| All Saints Lymphedema Center | Fort Worth | TX | USA | Top-notch facility with excellent staff. Good follow-up and aftercare. | |
| truman medical center | kansas city | MO | USA | is their a clinic in the kansas city, mo area ? | |
| ST. Johns Lynphodema Cl. | Springfield | MO | USA | ST. Johns Hospital is one block away from the clinic, if you are from out-of-town, you can stay in the Hospitality room there, and you'll have a driver pick you up and drop you off for your appts. during your first 30 day treatment. | |
| Rosanna | Rockledge | FL | USA | ||
| Excel | Indianapolis | IN | USA | ||
| Green Mountain Rehab | Bremerton | WA | USA | Debra Carpenter is one of the few lymphedema spoecialists in the Olympic Pennisula area. She is very knowledgeable about the condition and its treatments. | |
| Mercy Hospital Karen Callow | San Diego | CA | USA | Karen is so full of knowledge it is very clear that she truly loves her profession. when I first went to Karen I was in pretty bad shape and she did wonders for me, as well as giving me the tools to treat myself. Karen is an absolute expert in the field | |
| Doris Alton | Oneonta | NY | USA | Doris is extremely knowledgeable. She is constantly obtaining knowledge and applying it. | |
| Allegheny Valley Outpatient Therapy | Natrona Heights | PA | USA | I have gone to three treatments and my leg has decreased in size down 10 centimeters. Having problems with the insurance company covering people with breast cancer, but not other types of cancer. Therapy for me is limited | |
| Robin Blake | Murray | KY | USA | ||
| Compass Healthcare | Atlanta | GA | USA | SHE IS VERY CONCERNED & PERSISTANT IN HELPING ME TO BE EDUCATED, COMFORTABLE & MAKES SURE I GET ALL THE TREATMENTS & SUPPLIES I NEED, I CAN CALL HER WHENEVER I FEEL I NEED HER....SHE'S JUST THERE FOR ME. | |
| Joe Arrington Lymphedema/Edema Center | Lubbock | TX | USA | I am a lymphedema therapist at the Joe Arrington Lymphedema/Edema Center of Covenant Health System. Our clinic is staffed by three certified lymphedema therapists and we are dedicated to the treatment of lymphedema and related disorders. We strive to educate patients, families, and the medical community about this commonly ignored or greatly misunderstood condition. We provide treatment upon physician referral utilizing Complete Decongestive Therapy or CDT and the treatment is tailored to each individual's needs, abilities, and goals. In addition, we provide free consultations to anyone who believes that they may have or be at risk for developing lymphedema. | |
| HealthSouth-Shayne Welch | Chicago | IL | USA | Shayne was wonderful and so was her co-worker Kim. I couldn't have asked for better care. | |
| Elizabeth Romick | New City | NY | USA | ||
| Erin, P.T. | Aurora | MO | USA | My therapist is one of the very best. She is very knowledgeable and understanding. I would recommend her to anyone. | |
| St. Barnabas Hospital | Livingston | NJ | USA | Staff of 3 therapists specializing in Lymphedema. They have a comprehensive approach to patient treatment and care. They utilize MLD, bandaging, excersize, and sequential compression pumps at a low pressure when necessary. | |
| Stamford Hospital Rehab Center | Stamford | CT | USA | This clinic has a Physiatrist Dr. Freedman who is very hands on involved with the patients treatment along with her Therpaist Jennifer. | |
| St. Barnabas Hospital | Livingston | NJ | USA | Staff of 3 therapists specializing in Lymphedema. They have a comprehensive approach to patient treatment and care. They utilize MLD, bandaging, excersize, and sequential compression pumps at a low pressure when necessary. | |
| Stamford Hospital Rehab Center | Stamford | CT | USA | This clinic has a Physiatrist Dr. Freedman who is very hands on involved with the patients treatment along with her Therpaist Jennifer. | |
| St. Barnabas Hospital | Livingston | NJ | USA | Staff of 3 therapists specializing in Lymphedema. They have a comprehensive approach to patient treatment and care. They utilize MLD, bandaging, excersize, and sequential compression pumps at a low pressure when necessary. | |
| Stamford Hospital Rehab Center | Stamford | CT | USA | This clinic has a Physiatrist Dr. Freedman who is very hands on involved with the patients treatment along with her Therpaist Jennifer. | |
| Chestnut Hill Rehab | Philadelphia | PA | USA | The therapists were certified by the Fodder clinic in Germany. They were very informative and encouraging to me. They have recently started a support group. | |
| Easter Seals | Montgomery | AL | USA | The therapist was extremely good and it was a successful treatment. I would go again and also recommend it to others. | |
| Karen Baker | Mesa | AZ | USA | Compassionate, extremely knowledgeable, extremely effective in decongestive physiotherapy. If it wasn't for her, I'd still be in pain and crippled. | |
| Karen Baker | Mesa | AZ | USA | Compassionate, extremely knowledgeable, extremely effective in decongestive physiotherapy. If it wasn't for her, I'd still be in pain and crippled. | |
| ST. joseph's | ann arbor | MI | USA | At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/. | |
| ST. joseph's | ann arbor | MI | USA | At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/. | |
| ST. joseph's | ann arbor | MI | USA | At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/. | |
| ST. joseph's | ann arbor | MI | USA | At 19, Dr Willam Ellis Brown, now deseaced, cut off 62 lbs from my legs(knees-to-toes) grafted 2 lbs back on, & success/. | |
| Mirasol Lymphedema & Rehab Center | Las Cruces | NM | USA | Staff is wonderful. The therapist (Peter Ternedde)is very knowledgeable about lymphedema. He is also the only certified MLD massage therapist in the area. He also let me borrow a video tape on self massage and bandaging. He is working to help me be able to self-manage the condition once it is under control. The exercises are vey helpful. Plus he plans to have a Lymphedema Management seminar to teach clients self-massage and bandaging next month (January). He also started and helps sponor the local Lymphedema Support Group. | |
| Breezeway Theraputic Center | Marysville WA, usa | Susan is the greatest. I don't know what I would do without her. It is her dedication to learning about MLD and desire to help others that has saved me. Although the treatment is expensive and not covered by my insurance. I feel like a new person after my 2 hour treatment. I hope she never stops providing this very valuable service. | |||
| RIVERSIDE HOSPITAL | OTTAWA | Canada | BRIAN WAS VERY NICE AND VERY HELPFUL.HE KNEW ALOT MORE ABOUT LYMPHEDEMA THAN MOST DOCTORS. | ||
| ST. JOSEPH | ORLEANS | DR.JOHNSTON WAS WONDERFUL,HE WAS NICE,HELPFUL,HE HAS THE DISEASE HIMSELF,AND WAS VERY SUPPORTIVE | |||
| TIDEWATER PHYSICAL THERAPY, 12420, warwick blvd | ?? | VERY RELAXING AND EDUCATIONAL ON MY CONDITION. EXPLAINED HOW TO CONTROL AT HOME MY CONDITION. | |||
| University Hospital | Syracuse | NY | USA | My therapist Chris is one of the nicest people I have ever met, they are very understanding of my problems, and also my situation because I am a college student quite embarrased of my situation. I go to school in Athens, OH and there is no one around here to preform message therapy. If there is anyway you know of one please feel free to contact me at my e-mail address. | |
| Lymflo Therapies | Chapel Hill | NC | USA | The setting was pleasant and the therapists were knowlegeable and caring. The overall experience, and the quality of care, have been excellent. | |
| healt clinic | londonderry | u k | ireland | ||
| Lerner Lymphedema Services | ?? | Florida | USA | I had treatments twice a day for four weeks.I had a very good experience there and learned how to wrap and care for my condition that is a lifetime condition. Everyone should have the educational experience to learn all you can about the condition. | |
| Kessler Lerner | ?? | MA | USA | The therapsit that works at this facility is the one who worked in Boston at Lerner and he is the teacher for the Academy trained by Dr. Robert Lerner the best there is. Thank god for his knowledge and his persistence on helping this treatment get tot he USA | |
| Healthsouth | Reno | NV | USA | Laurie Marlow was a top-notch educator and taught me self-care that allows me to care for myself now. | |
| Healthsouth | Reno | NV | USA | Laurie Marlow was a top-notch educator and taught me self-care that allows me to care for myself now. | |
| St. Pete's Hospital, Lympadema Clinic | Olympia | WA | USA | They were extremely courteous and very knowledgeable. I was referred from my Radiation Therapist and they assessed my arm, and performed Manual Lymph Drainage and told me things I had never heard before at another clinic. After my arm had gone down, they measured me for a new sleeve, and then insured that it fit when it arrived from Germany. | |
| St Francis Hosptial--10th FL--Oncology Rehabilitation Center | Greenville | SC | USA | Well trained, symphathic therapist, very knowlegeable in treatment | |
| All Saints Lymphedema Clinic | Ft. Worth | TX | USA | I have received an enormous amount of education and care. I have irradiated fibrocystic lymphedema..Each year it has improved. I go every six months. The arm responds more quickly each time and the therapies are getting shorter...Especially the last two years. Nutrition and lifestyle SUPER IMPORTANT! | |
| UCLA Cancer Center | Los Angeles | CA | USA | They knew about the MLD procedure and I felt very confident with them but the expense was more than we could afford as was the drive. | |
| Olympic Physical Therapy | Seattle | WA | USA | Excellent therapists who know alot about lymphedema and MLD. | |
| Fargo Merit Care | Fargo | ND | USA | They were very informative. I had treatment every day for 3 weeks and continue to have ongoing treatment as needed. | |
| PVHMC | Pomona | ca | USA | My therapist, Jamie is wonderful. I do not feel that I am being rushed. She has given me excellent advice and takes a lot of time with me | |
| Body & Soul | Palos Heights | Il | USA | She is an RN who specializes in LE and other health problems, is Vodder trained, and is knowledgeable in alternative medicine. | |
| Lerner lymphedema services | New York | NY | USA | Good info. on the condition. Wonderful physical therapists. Consistent monitoring by physicians. | |
| Accent On Health Clinic | Corpus Christi | TX | USA | This is a small clinic that is very large on knowledge and compassion. I had extreme swelling of my left leg up into the trunk of my body. As of today, wearing comperssion panty hose I have small amount of swelling in my ankle. We can live with this. I don't know about any other clinics, as I believe you can't do any better than Accent on Health Clinic. | |
| North Memorial Hosiptal | Robinsdale | MN | USA | ||
| Vodder Clinic | Walchsee, | Austria | |||
| Crystal Coast Therapy Services | New Bern | NC | USA | Tracy Sparks is wonderful. First time I have felt treated human and like I was not a freak. She not only helped my physical condition but my mental as well by treating me as a person with feelings in a bad situation. We need more like her in the medical profession. | |
| LERNER LYMPHEDEMA SERVICES | SUNRISE | FL | USA | The doctor was very good in the dianostic of the disorder. Doctor King monitored the thearopist conducting the massage theorapy. The thearopy took a time period of two weeks. The clinical work is a process of 2 sessions a day. The results of the sessions were overwelming withinthe first week. Participation of the spouse is a must for me as my lymphedema is in my leggs. Even if no spouse is available someone should accompany to help on those days when the massage and the wrap is required quite exstensively through out your life. | |
| St. Joseph Hospital | ?? | ||||
| Hoag Hospital | Newport Beach | CA | USA | PacifiCare (via Greater Newport Physicians IPA) will pay for MLT with the goal toward teaching the patient how to self massage and bandage. They will not pay for \ | |
| Cresera Wellness | Williston Pk | NY | USA | Satisfactory Very expensive with no coverage | |
| Dr Gopal Clinic | Mohali | THEY CARE THE PETIENT VERY WELL | |||
| Fairlawn Rehab | Worcester | MA | USA | This experience was excellent.. Tought me | |
| Baptist Hospital East | Louisville | KY | USA | I could not find a single Doctor who knew much about lymphedema so to have this clinic near my home, and a therapist trained to treat lymphedena is a godsend. My therapist is experienced and also keeps educating herself on new treatments and studies. She has been a great help in coping with this condition. | |
| Provena Physical Therapy & Sports Rehab | Joliet | IL | USA | I have a very good therapist. She has taught me a lot about my condition and how to treat it. I am still going for therapy. Treatment has been successful thus far. I would definitely go to this facility for further treatment if necessary. I would definitely recommend it to others. | |
| Lerner's Lymphedema Center | Ft. Lauderdale | FL | USA | First and only clinic I went to. I live 125 miles away and trying to find a closer one. I am now on Medicare whereas I had to go to this county on my insurance plan. I would go back to Lerners in a heart beat. Excellent service and treatment. Personnel was friendly and helpful. Had a kitchenette if you wanted to bring your meals while waiting. Since I lived so far away I had a morning and afternoon session for two weeks to complete my treatment. That was two years ago. Trying to find a place in Vero or Ft. Pierce to go again. | |
| HealthSouth, NorthWestern Hospital-Downtown | Chicago | IL | USA | My experience here was excellent. The therapist was very helpful and understanding on how I felt about having Lymphedema. Unfortunately my therapist has moved to the East Coast and I just hope that I can find a therapist that was just as wonderful as Laurie was. | |
| Elks Rehab; ST. Lukes Medical Center | Meridian | ID | USA | Friendly Staff, they know what they are doing. | |
| Rehab Center | Berlin | VT | USA | People were very warm and caring and very helpful. Very relaxing atmosphere. Ease of treatment table to go as low as below my knees for comfort of sitting, changing and removing bandages and dressing/undressing. Therapist was very good with therapy and answering questions regarding my lymphedema. | |
| Hoag Hospital | Newport Beach | CA | USA | PacifiCare (via Greater Newport Physicians IPA) will pay for MLT with the goal toward teaching the patient how to self massage and bandage. They will not pay for \ | |
| Retreat Hospital (Physical Therapy) | Richmond | VA | USA | This isn't really a clinic per se. It is the physical therapy section of Retreat Hospital. They have a therapist there (Angela Denny) who is trained in Lymphadema Management. I highly recommend her to anyone.....she really helped me out! Angela is very caring and very informed. I'm sure she must have been the top of her class | |
| moffit cancer host. | tampa | fl | USA | ||
| REHABILITY CENTER | ROCKVILLE | MD | USA | THEY WERE FRIENDLY AND HELFUL IN WORKING WITH ME FOR SOMETHING, I HAD NO IDEA WHAT TO DO... | |
| St. Agnes Hosptial Lymphedema Clinic, Caton Avenue | ?? | The therapists were very timely with the treatments and knowledgable about the disease. The therapists were very friendly and showed plenty of concern for the patient. | |||
| Accent on Health | Corpus Christi | TX | USA | The theparist is the best and they realy know how to treat Lymphedema. | |
| Joyner Sports Medicine | Beaufort | SC | USA | Kevin Green is one of the most compassionate and patient men you could meet. He has made this whole difficult time of therapy easier by being patient with questions, informative while treating and upbeat about progress (or lack of progress). Great clinic and staff. | |
| st annes hospice | bolton | bolton | United Kingdom | took my gp three years to send me to the hospice, since going they have been of great help and comfort . | |
| Mercy Catholic Medical Center | Lansdowne | PA | USA | The therapists involved in my care took the steps needed to try and get whatever my insurance would provide. The therapy truly works and does ease the pain and tenderness that evolves from the lymphedema. | |
| BACK AND CONDITIONING CLINIC | LAKEWOOD | co | USA | THE PT AND OT ARE BOTH VERY WILLING TO LEARN AND EXCITED ABOUT HELPING-THE PT CAN GET BILLING APPROVAL AND SEEMS TO HAVE MORE EXPERIENCE--WE WERE HAVING THE OT SHARE THE TREATMENTS SO SHE COULD EXPAND HER KNOWLEDGE TOO--SAME TREATMENT AND WRAPS--BUT THE INSURANCE WOULDN'T COVER HER SO WE ARE JUST USING THE PT NOW-CLINIC IS VERY SUPPORTIVE AND FRIENDLY--EXCELLENT | |
| lrgh-lymphedemic clinic | laconia | nh | USA | They are thorough, thoughtful, considerate and caring. They go out of their way to make appointments to fit my schedule. They are very informative | |
| Olathe Rehab | Olathe | Ks | USA | ||
| Willis Knighton Medical Center | Shreveport | LA | USA | Katie is my physical therapist. She not only tends to the massage, exercises etc., she also builds your self esteem. | |
| Sioux Valley | Sioux Falls | SD | USA | My therapist name was Kevin Horner, he gave me a free evaluation, then after 2 wks. of MLD, he said he felt he had down all that could be done, that has been almost 5 yrs. I wear a sleeve everyday and go on the pump for 30 min. every night | |
| Excel Rehabilitation | Indianapolis | IN | USA | ||
| Southern NH Rehabilitation Center | Nashua | NH | USA | ||
| Center for Rehad/Sports/Wellness | Mission Viejo | CA | USA | This clinic was very beneficial to me. I am now using exercises and massage "Karen" taught me at home. | |
| Memorial Hospital/Roger Klauer MD | South Bend | IN | USA | A physical/occupational therapist worked with me. She was very caring and helpful | |
| ROGUE VALLEY MED CENTER | MEDFORD | OR | USA | THE REHABA DEPARTMENT HEAD DIAGNOSED THE LYMPHEDEMA, ALL THE OTHERS, DOCTORS INCLUDED DID NOT HAVE A CLUE AS TO WHAT WAS CAUSING THE PHANTOM/SUBJECTIVCE SWELLING | |
| Lerner Lymphadema Services | New York | NY | USA | The staff was very knowledgeable and I went daily for 3 weeks. Had 2 massages per day and remained wrapped for 3 weeks. Used compression sleeves by day and bandaging by night.I also purchased a Reid Sleeve at a cost of $1,400.00. I may be the best way of controlling drainage, however, it is very difficult to sleep with.Unfortunately, Lymphadema Services in New York City is now closed and to my knowledge nothing has replaced it in New York City. | |
| Lerners | new York City | ny | USA | ||
| Lymphedema | Tooting | London | United Kingdom | The staff there are fantastic and are very helpfull.Prof Peter Mortimer is one of the best doctors that i have seen for years. | |
| Barb Osinga | London | ON | Canada | This is not a clinic, but a private therapist. With her help I lost 42 lbs. of fluid in my right leg. She is a wonderful person and therapist. ODSP has refused to pay for the treatment and so far I am over $3000 in debt to her. Due to the legislation in the Provincial Government, there is no funding for this specific kind of therapy. Which is crazy because ODSP has paid for everything else except for the actual treatment. Her name is Barb Osinga, and her number is 519-432-4375. My family and I are forever indebted to her for what she has done for us. | |
| Ponessa Manual Lymphatic Drainage Clinic | Lancaster | PA | USA | They are my heros. Donna Ponessa owns the clinic. It is small, intimate. She molds the therapy to your lifestyle. Has indepth knowledge of lymphedema, and graduated from Vodder training.Her therapy was outstanding. She is also a joy to be around. She is compassionate and also has a good sense of humor. | |
| cancer foundation | Perth | western Australia | Australia | very friendly and helpful and very willing and happy helpful people,nothing was to much trouble.Would recomend it to all and the lazer treatment was great,helped in a small way .Yes would go back again and again,excellent service. | |
| Memorial Hermann, medical center | houston | tx | USA | oh my god ! I cant even begin to explain how great they were to me. I only had 1 issue with | |
| North Star Lodge | Yakima | WA | USA | The therapists were very caring...my last appt was 11 Dec 2K1 and my dr wouldn't allow me more visits when I really needed them,as now my condition is 10 times worse & spreading. | |
| Lake Forest Hospital | Lake Forest | IL | USA | My therapist Ellen was very nice and supportive. This location was recommended in the book "Coping With Lymphedema" | |
| Fallon Goldstar, Goldstar Blvd. | Goldstar Blvd. Worcester | MA | USA | ||
| St. Peter's Hosp Physical therapy dept | Albany | NY | USA | Very instructive, hepled alot..taught me and my spouse. | |
| Lymphedema clinic | Lancaster | PA | USA | These people will do anything you need. write letters, call for equipment, etc. | |
| Lymphedema Clinic, Fairview-University | Minnapolis | MN | USA | They do great evaluation and great treatment. Couldn\'t ask for a better therapist. I recommend Patti Jo | |
| St. Joseph South Campus Occupational and Physical Rehabilition Center | Bellingham | WA | USA | I have been very fortunate to be assigned to this center. Cindy Fredericks, Beth Watkins who are the PT's wrapping me and working with me have been outstanding. Cindy has been my PT since March, 2002 and we have had outstanding results and she is helping my battle 10 years of untreated/undiagnosed lymphedema. I would recomment Cindy or Beth to anyone. | |
| Childrens Medical Center of Dallas | Dallas | TX | USA | if we could go high there won't be a number to give them they have been very good to us | |
| Loma Linda University Medical Center Rehabilitation Institute | Loma Linda | CA | USA | Friendly, knowledgeable staff, well-equiped, and motivational. | |
| Lymphedema treatment center | Sacramento | CA | USA | very kind compassionate people. In 5 treatments, I was taught how to compression wrap my fingers and arm, I was provided with a custom fit glove and sleeve, and my HUSBAND was taught how to provide MLD therapy on me. My success is fantastic. They worked wonders with insurance, fabulous place. Need publicity!!! | |
| WOUND AND LYMPHEDEMIA CTR. | OAKLAND PARK | FL | USA | EXCELLENT DR.(McDONALD)AND RN NANCY SIMS &(THERAPIST) HOLDING SUPPORT GROUP MONTHLY MEETINGS IN DR OFFICE. FACILITIES ARE ULTRA MODERN WITH VIDEO'S AND DIGITAL PC MEASURING EQUIPMENT. | |
| Shriners Hospital | Sacramento | Ca | USA | I stayed at the Shriners Hospital for two weeks, confined to bed using the Reid Sleeve and pump. If my leg had drained like they wanted, they would then think about surgery. At that time, we moved to Texas. I am still interested in this treament, but now I'm in Texas. | |
| Carle Clinic | Urbana | IL | USA | I started here just after my mastectomy. My doctor recommended that I get a compressive sleeve first. Then I was sent to a Physical Medicine Doctor. He had me fitted with a compressive sleeve that was made to measure for me ( the first was nearly over the counter simple). Then he had me go to the therapy unit for pump treatment. I seemed to respond well to that, so he prescribed a Wright pump. I have used that for the past four years. Recently I heard that they had added manual message to their list of services. I am just finished with a week's treatment at that facility. I went to the Clinic each morning for massage. Then compressive bandaging was put on my arm. I left it on for the rest of the day and went back in the next morning for a repeat performance. They would really rather I had continued for 2 or 3 weeks. I, however, found that I could be away from home only so long. (Carle is about 100 miles from my home.) I did feel that the treatment was good. ! | |
| kaiser | portland | or | USA | This is a new program at kaiser. The theropest is very negligible. still learning and educating. She is the first person I ever found that has a clue.It was a good experience. | |
| The Therapy Center | Knoxville | TN | USA | ||
| Angelo Zappacosta | Northbrook | IL | USA | Angelo is a message therapist. He was very concerned about my comfort level. He was extremely professional. I knew that I was there to have the fluid moved from the right side of my body to the left for it to drain out of my body. He was concerned that I might have trouble with him working on my breasts. I explained that I was there to have him help me and I thought that was one area that he would be working with so I had no problem with him. I was given several choices of therapy. After speaking to Angelo I choice him because he listened to me and what my concerns were. I found the experience very comfortable. He asked that I record all my reactions to the massage so that we can see if it worked for me. | |
| River's Edge Physical Therapy | Great Falls | MT | USA | The therapist I worked with is the only certified MLD in the state. He is very compasionate and dedicated. | |
| CBF, Inc | Knoxville | tn | USA | The therapist, Kathy, was excellent. She was well trained. Also, Kathy put you at ease and this helped during the entire process. | |
| Genesee Hospital Physical Therapy Lymphedema CLinic | Rochester | NY | USA | Although the treatment appeared to be helpful the effectrs lasted only 6 months which was only a two month improvement in intevals between serious infectious bouts. Genesee Hospital is the only8 one in the Rochester region. Roswell Park in Buffalo recommended this to us | |
| Genesee Hospital Physical Therapy Lymphedema CLinic | Rochester | NY | USA | D AS SERIOUS BY MY EMPLOYER!!! Genesee Hospital is the only8 one in the Rochester region. Roswell Park in Buffalo recommended this to us | |
| UNC Hospital | Chapel Hill | NC | USA | Very good. I was fitted for the Wright Linear pump. | |
| Leicestershire Hospice | Leicester | Leicester | United Kingdom | I have attended on several occasions for treatment for Lymphedema of the leg. | |
| Healthsouth/Northwestern Memorial Hospital | Chicago | IL | USA | The clinic was great...when I started, my lymphedema foot/leg was 9 centimeters larger that my normal foot/leg. After two weeks of therapy, it was only 1 1/2 centimeters larger. | |
| Regional Lymphedema Treatment Program | South Bend | IN | USA | Have been very thorough, teaching me and my husband | |
| Aurora | San Francisco | CA | USA | Treatment was successful. The very first day made a dramatic change. After five doctors telling me that I would just have to live with it, Saskia Thiadens was a life-saver. She convinced my doctor for me to have treatment. | |
| St. Mary's Hosiptal | Milwaukee | WI | USA | This is the only place that take my | |
| Mayo Clinic | ?? | MN | USA | This is where my condition was first diagnosed. | |
| at the Breats Care Center. Fletcher Allen Health Care | Burlington | VT | USA | Several Vodder-certified therapists. Excellent treatment. | |
| ochsner hospital | new orleans | la | USA | brooke was brought to oschner hospital when | |
| linda miller | phila. | pa | USA | Linda Miller has offices in Cherry Hill, N. J. and Phila., Pa. She wqas recommended to me by 3 hospitals, major centers in Phila. for breast cancer. He used the Israe3l pump machine after manual therapy, but has a difficult time getting insurance to pay for the rental of the pump whyen patients require this. My lymphedema has gotten very severe the past 3 months. I have treid everything, and see Linda once or twice a week. There has been little improvement. I do well at her office after I use the pump and feel that I should have this machine at my own home. Her distributor is looking into the possibility of my insurance paying for rental and possibly purchasing this Lymphya Press machine. | |
| Lymphedema Clinic @ St. Joseph's Hospital, 50th & Chambers, | Milwaukee | WI | USA | This clinic has 2 therapists trained in the Vodder method of therapy. Both were very knowledgable, friendly, easy to work with. Education and self-management is stressed. Over 2 months of visits,I learned how to bandage, exercise, and self-massage. They told me it can take a year or two of self-therapy to retrain the lymph to use a different drainage path over the shoulder. I followed the program for about 3 more months on my own, but never went back for my follow-up visit. (And they never contacted me to follow up.) | |
| St. Agnes Medical Center | Baltimore | MD | USA | ||
| Aurora | San Francisco | ca | USA | Very positive. They gave me hope after five drs. said that there was nothing could be done. Saw results the first day. Excellent info. and training for self-management. Very caring & professional staff. Would highly recommend them. | |
| The Ultimate Health Center | Asheville | NC | USA | I have had MLT/CDT at Horton Rehabilation Center in Middletown, NY, St. Anthony\'s Rehab.in Goshen,NY, The lerner Center in NYC, Kessler Inst. in Paramus, NJ and did\'nt get the results in any of these places that I got at The Ultimate Health Center. Also, Vassar Lymphedema Clinic in Poughkeepsie refuse to see me. the therapist at the Ultimate Health Center, Peter Glasser really knows this disease and is the ONLY therapist I trust.I have secondary lymphedema in my right leg from surgery in 1990 or melanoma on my right foot. The lymph nodes were clear the cancer had already metastized to my brain.I am still in total disbelief that NO ONE of the TEAMS of doctors I had that NOT ONE OF THEM EVER TOLD ME ABOUT THIS DEVASTING DISEASE OR WHAT TO LOOK FOR. | |
| KAP'IOLANI WOMEN'S CENTER | HONOLULU | HI | USA | ||
| Lerner Lymphedema Services | Princeton | NJ | USA | LLS helped me realize there are others like me...being there made me feel "normal" again. I learned how to maintain my lymphedema and live a normal life. The visit saved my life and my mental attitude! I've recommended them to anyone I've met with lymphedema. | |
| Johns Hopkins | Baltimore | MD | USA | i had 225 pound tumor removed in 1999 it hasnt come back im still recovering for more info email me | |
| MD Anderson | Orlando | FL | USA | Very informative... | |
| St.Thomas Hospital | Nashville | Tn | USA | Excellent facility-please call us if you are in the area to set up an apt.-ph#615-222-6671. You must have a doctors prescript. You may also call 615-222-5553 with any questions re: lymphedema or treatment. | |
| University HOSPITAL | Cleveland | Oh | USA | This is the first place I received a proper diagnosis. They did not try to rush me through, but took the time to explain the condition to me and provided me with information about ongoing treatment. | |
| Ellen Poage, RN,MT,MLD | Fort Myers | FL | USA | Ellen provides excellent, professional care. | |
| Mitcham Rehab Clinic | Kingswood (nr Adelaide) | s. Australia | australia | Outstanding MLD, the best I've had. Really saw results!! Used Casley-Smith method. Very impressed. Got two sleeves that fit great. Very nice and compassionate people. I also did experimental laser therapy. | |
| Summacare Lymphedema Clinic | Akron | Ohio | USA | P.T.s were very knowledgeable with treatment and helpful during and after treatment. | |
| Fenton Physical Therapy | Fenton | MI | USA | Great PT, is working hard on decreasing the size of my arm. But the office does not have a PT that specializes in lymphedema. They know how to do the lymphatic massage, but as far as protocal they are unsure. | |
| Virginia Masion | Port Angeles | wa | USA | Efficent, friendly and concerned. Doctor Gipe actually saved my life by detecting a tumor in my breast. He ordered a mamograph that was only my second mamograph in 61 years. The first was somewhere back in the my 30s. | |
| General and Vascular Surgery | Port Angeles | wa | USA | Excellent surgeons in this clinic. Dr Wendel was my surgeon. | |
| All Saints Hospital | Ft. Worth | TX | USA | This is the only treatment that has helped me but | |
| Health South Rehab | Birminghal | AL | USA | The Physical Therapist was very helpful and was able to get insurance to provide necessary time and equipment for treatment. | |
| Mayo Clinic | Rochester | MN | USA | AS far as i know it was great. I was only in 6 th grade when i went and didn't quite understand all that was being siad. Now that I have had it for so long i have come to know a lot about what I have. By what my doctors say The Mayo Clinic is very good. | |
| Holston Valley Med. Center | Kingsport | TN | USA | ||
| Stanford Lymphedema Center | Stanford University | ca | USA | Although the cause of my illness was inconclusive, the four weeks of testing, treatment and therapy were quite welcome. I am from GUAM - NO ONE ON MY ISLAND COULD TELL ME ANYTHING ABOUT LYMPHEDEMA - OTHER THAN IT WAS NOT CURABLE. | |
| PEAK-Cheri Ware | Bemidji | MN | UAS | The MLD therapist is LaDuke trained and excellent. | |
| Total Rehab | Stillwater | OK | USA | Therapist is very thorough, conscientious, works with insurance company very well and really cares about her patients. I highly recommend her. | |
| Munson Health Center | Traverse City | Mi | USA | The people were very caring and informative. Made sure I understood everything and felt ready to do the maintenance on my own by the time I was done. Wonderful experience. | |
| Emily Iker, M.D. | Santa Monica | ca | USA | She's great. I've only had one treatment (battling insurance for more) and while I was there, she introduced me to another patient who has had regular treatment for SEVERE lymphedema and has experienced incredible results. | |
| Physicians Medical Center | Richland | WA | USA | Ms Diane d' St Croix is the main (and only) lympatic drainage massage therapist in the Tri City Community - which consists of three cities of 40,000 population or more - she was trained by someone by the name of Chickley - his technique is far above the Vodder treatment. She will be fully certified by November of this year. Hopefully others will follow. Getting an appointment with her is a major pain . | |
| Lymphedema Clinic University Hospitals of Cleveland | Cleveland | oh | USA | Absolutely wonderful, it was the first time in years I was able to loose the lymph fluid without lasix. I was taught to use MLD and to wrap my leg for maximum effect. Dr. Plotkin and the therapist/nurse Mary Lou made my return to work full-time possible as I was on a disability leave at the time. What I learned from them was priceless. | |
| Idaho Elks Rehabilitation | Boise | id | USA | The Clinic and all the people who worked there were great. | |
| Bryn Mawr Hospital | Bryn Mawr | PA | USA | Personalized, professional service from Deborah Dawson MSPT | |
| East bastist Hospital | Louisvillie | Ky | USA | They were very good about explaning what they were doing. | |
| All Saints Hospital-Lymphedema Center | Ft. Worth | TX | USA | Fantastic results. | |
| north broward medical group dr. macdonal, 4080 n ocean blvd ft | lauderdale | fl | USA | this group of people are very good and kind but they are very much interested that the got pay for what they did. but i was treated very well other wise | |
| Fairfax Hospital, Physical Rehab. | Northern | va | USA | It was a miracle treatment. I am thrilled with them. | |
| lRGH hOSPITAL | lACONIA | nh | USA | mY EXPERIENCE WAS VERY GOOD, EXCELLENT IN FACT BUT UNFORTUNATELY FOR ME IT ISNT WORKING VERY WELL AS i HAVE A NUMBER OF OTHER MEDICAL PROBLEMS. i AM HAVING STOMACH BY PASS SSURGERY IN A COUPLE OF WEEKS SO HOPEFULLY i WILL BE ABLE TO CONTINUE ONCE i AM ABLE AND CASN LOSE A CONSIDERABLE AMOUNT OF WEIGHT. | |
| lRGH hOSPITAL | lACONIA | nh | USA | mY EXPERIENCE WAS VERY GOOD, EXCELLENT IN FACT BUT UNFORTUNATELY FOR ME IT ISNT WORKING VERY WELL AS i HAVE A NUMBER OF OTHER MEDICAL PROBLEMS. i AM HAVING STOMACH BY PASS SSURGERY IN A COUPLE OF WEEKS SO HOPEFULLY i WILL BE ABLE TO CONTINUE ONCE i AM ABLE AND CASN LOSE A CONSIDERABLE AMOUNT OF WEIGHT. | |
| MCV | Richmond | VA | USA | Therapists were highly trained; strong advocates. | |
| Des Moines General Hospital | Des Moines | IA | USA | ||
| Excel Rehabilitation | Indianapolis | IN | USA | They were great....it is just too far away from my home for me | |
| D.T. Watson | Sewickly | PA | USA | They helped David get the pump for his legs but, the insurance company wouldn't pay for any of the services. | |
| Maine Coast Memorial Hospital Physical Therapy Dept. | Ellsworth | ME | USA | Marie-France is a PT that is very knowledgeable and does a great job of both manual drainage and fitting for a sleeve. She was very helpful in giving me both information on how to treat lymphedema and how to keep it from getting worse. | |
| The Lymphedema Treatment Center | Newport News | VA | USA | The staff is very friendly and knowledgeable. They encourage patient comments and suggestions, and the atmosphere is very professional and private. | |
| All Saints Hospital Lymphedema Center | Fort Worth | TX | USA | The facility is very well appointed and modern. The staff are courteous and professional. The treatment was very successful. I lost over 30lbs of fluid and over 24 inches of diameter in my legs. The staff vere very helpful in instructing me how to bandage and how to use the suppression garments. The center also has an on-site exercise facility where I was shown the proper exercises to perform. I have already returned for follow-up treatment 2 years after the initial visit. I highly recommend All Saints. | |
| The Therapy Center | Knoxville | TN | USA | Mary Jo Marino is the PT and she devotes her life to this. She works with Children and adults, some who are paralized. She works 7 days a weeek and takes patients who aren't covered. She is a very christian women who believes this was her calling. AWESOME!! | |
| lerner lynphedema | princeton | nj | USA | They were very, very compassionate to all the people that came for treatments. We felt like one big happy family. | |
| PEAK-Cheri Ware | Bemidji | MN | UAS | The MLD therapist is LaDuke trained and excellent. | |
| pomona valley medical center | pomona | ca | USA | on-time, friendly, patient,professional staff. listens intently. takes time to insure home instructions are fully understood and that exercises and massaging techniques are in compliance to promote healing. | |
| sunnybrook med.ctr | toronto | ON | Canada | DR.SIBBALD IS A SPECIALIZED DERMOTOLIGIST IN LYMPHEDEMA AND HIS STAFF ARE FULLY QUALIFIED. | |
| OTP | Richmond | VA | USA | ||
| Lakes Region Hospital | Laconia | NH | USA | These therapist know more than any Doctor does about this problem and a problem it is! | |
| Mason City Medical Clinic | Mason City | IA | USA | Would like to know more about pharmacological Tx. | |
| Mason City Medical Clinic | Mason City | IA | USA | Would like to know more about pharmacological Tx. | |
| Southwest Lymphedema Services | Albuquerque | NM | USA | Re: insurance co. and payment - it was my plan which didn\'t pay for these services, but I know other plans with the same co. did pay for the treatments. Fortunately, the women running this clinic were willing to give us a discount since we were paying out of pocket.re: clinic & treatment - I was very pleased with their service and my leg responded quickly. I recommend them highly. | |
| coalfield medical | coalfield | tn | USA | ||
| st.petersburg general outpatient therapy | saint petersburg | fl | USA | ||
| Trinity Hospice | Blackpool | Lancashire | United Kingdom | They have set up a Lymphoedema support group and treat both primary and secondary suffers | |
| kahi mohala | ewa beach | HI | USA | i am gay | |
| ST. PETER\'S REHAB | OLYMPIA | WA | USA | Therapists are very knowledgeable. Hospital offers inpt rehab for lymphedema. I experienced good results in reduction and wound care. | |
| Physical Therapy & Rehab Specialists | Midland | MI | USA | Certified lymphedema therapist with a manual therapy background | |
| Flagstaff Medical Center | Flagstaff | AZ | USA | ||
| pinnacle health | harrisburg | PA | United States | ||
| Soft tissue Therapy of Brevard | Melbourne | FL | USA | Mike McNally is the massage therapist and he is wonderful. | |
| Roswell Park | Buffalo | NY | USA | This clinic was the only one that would evaluate me. I had no know cause for the swelling and they evaluated me after 11 years of wondering what was wrong with me. Doctor after Doctor said the swelling was normal water weight. When my leg started bulging 8 years into it, I forced the doctor\'s hand and asked to be referred to Roswell Park after speaking with the head of their physical therapy department. The confirmed that I did have lymphedema and started me on treatment. | |
| Franchesca Clay | Virginia Beach | VA | USA | Franchesca Clay was an excellent therapist. With a problem such as Lymphedema that not many people know about including the doctors, she took care and patience in treating me. I was scared about my leg. And she explained every stage to my therapy in detail. | |
| House of Health | Ada | OK | USA | The Therapist is very well educated and wonderfully qualified!! She has brochures, and charts on site. She was trained with Upledger, and Dr. Chickly himself. She CranialSacral Therapy, which is blended into her Lymph drainage therapies. | |
| Lymflo Therapies Inc | Chapel Hill | NC | USA | My daughter is 3 1/2 years old and has been getting treatment for 3 years. she started treatment at 6 months old. Lymflo Therapies Inc. are great with and answer any questions my daughter or I have. | |
| Mayo Lymphadema | Rochester | MN | USA | ||
| Good Samaritan Hospital | Vincennes | IN | USA | Would recomment this hospital to anyone who had lymphedema. Has an excellent theraphist. | |
| Good Shepherd Hospital | Barrington | ILLINOIS | USA | ||
| Meritcare | Fargo | North Dakota | USA | ||
| Therapy Concepts | Prairie VIllage | Kansas | USA | I want to say that this is the finest resource for patients I have found. After being sent to several other places by my doctors - I found this place from a lady at church who has lymphedema too. The director has over 25 years experience, and her therapists are wonderful- every employee is extremetly professional. I had lost hope, but now - I\'m glad I found Therapy Concepts. I also heard a few years back she had one or more employees embezzle money and try to open thier own shop, so maybe thats the reason for the otehr message - all I know is they see alot of patients every day, and we all get treated exceptionally well - even the ones without insurance. I\'m glad I found this site so I can tell other people about the hope there can be for lymphedema when you find a really experienced clinic - like this one. I wish you all the best in your journey, God bless each of you. | |
| Olympic Physicial Therapy | Seattle | WA | USA | They have mulitple clinics in the greater Seattle are that provide MLD and bandaging. One of the few clinics that offer the service | |
| Specialty Rehabilitation | Newark | DE | USA | Exceptional clinic specializing in the treatment of lymphedema, cancer rehabilitation and women\'s health. Beautiful atmosphere, caring staff and excellent results!!! | |
| wellness one | cary | nc | USA | OT Phyllis has been a godsend. Other therapists have been very unresponsive to mt quality of life issues. Never was taught to properly wrap, was improperly fitted for compression garments before... limb is almost normal size and range of motion is greatly improved | |
| Mayo | Rochester | MN | USA | ||
| Annapolis Lymphedema and Therapy Chenter | Annapolis | MD | USA | This is the first clinic that I had to pay for my bandages and supplies because they said they did not get reimbursted from the past from other companies. I have not sent in paper work yet to get reimburst because I am going though therapy now. Before this year the other companies sent in the paper work. | |
| Health Horizon | MD | USA | This was the first one I ever went to in 2002. | ||
| The Lymphedema Center | Annapolis | MD | USA | Went to this one in 2003. Same insurance company (Bluecross/Blueshield) but may have been under a different co.name Don\'t remember address | |
| Kesslers | Annapolis | MD | USA | Not quit sure of the name. Name was changed went there in 2004 | |
| Wymer Physical Therapy | Corpus Christi | Tx | USA | Therapist knowledgeable regarding lymphedema and associated problems. Courteous and informative. Provided training to family members in myofascial lymphatic drainage to assist in care at home & fitted with custom compression garments which have helped tremendously. I had seen another therapist in town but was not impressed with them and heard about Richard Wymer form a friend. | |
| clairmont center | longview | texas | USA | ||
| The Path To Wellness | Tulsa | OK | USA | Patricia J DeMoss RN/BSN/LLCC is a Certified Lymphatic Therapist, from The Upledger Institute. She herself has lymphedema and understands the ins and the outs of this desease. She is highly educated and yet down to earth. She mixes Lymph, CrainoSacral & massage in a wonderful treatment, that is low in price and affordable. 918-494-0082 | |
| Physical Therapy for Women | Wilmington | NC | USA | ||
| Lymphedema clinic | Bangor | ME | United States | ||
| White Craine Studios | Tulsa | OK | USA | I have had groin surgery, after a vaginal hysterectomy; I went to Patricia J DeMossRN/BSN/LLCC , trained at Upledger Institute; She was awesome!! She now is the only therapist who has taken the Advanced Lymph Course II, in Oklahoma. \ | |
| Bandagesplus | Miami | FL | USA | This is a clinic where the owners are well trained therapist. Renee being a RN as well as a massage therapist, she has taken her lymph training with Upledger and Vodder courses . Her husband also has class\'s and is a fitter of the garments as well as their daughter.!!! If you need supplies they will help you in every way possible, if you need work they have a clinic!! you can reach them via computer www.bandagesplus.com Good Luck!! | |
| Star Physical Therapy | Nashville | TN | US | A welcoming atmosphere with great results! Please call if you need Lymphedema Therapy (615) 778-9894 | |
| White Crane Studio | Tulsa | OK | USA | I highly recommend Pat DeMoss at White Crane Studio(918-633-5100). My husband has had lymphedema since an accident when he was 20 (now in his 50\'s). Not only has Pat\'s skill reduced the swelling in his leg, but it has cleared up the congestion in his lungs (causing chronic bronchitis) due to an overload to his lymph system after all these years. She has advanced training from the Upledger Institute in not only standard lymph drainage therapy, but also advanced training in deep lymph therapy which no one else in Tulsa has. Her rates are very affordable and her technique is excellent. | |
| Lahey Clinic | Burlington | MA | USA | ||
| Florence Barna | Fullerton | CA | USA | Extremely well informed and able. Very caring and sympathetic. St.Jude Lymphedema Clinc is fairly new and the Doctors associated with the hospital are very supportive. | |
| WOMENS COLLEGE HOSPITAL, DERMATOLOGY DEPT. | ?? | I WAS RECCEOMMENDED TO SEE A DR.SIBBALD WHO SPECIALIZES IN EDEMA.MY LEGS HAVE BEEN MONITORED SINCE THAT INTRO SOME 3 YEARS AGO. MOST OTHER DERMATOLIGISTS KNOW VERY LITTLE ON HOW TO CORRECT MY PROBLEMS.BUT,THERE IS NO CURE.I AM A MAN OF SOME 380 LBS.WHICH MAKES IT MORE DIFFICULT TO HEAL MY LEGS. | |||
| pomona valley comm.hosp.p.t. | pomona | ca | USA | compression boots wraped both legs with wet | |
| Cleveland Clinic Foundation | Cleveland | OH | USA | Insurance would only pay for treatment by a certified occupational therapist in their network which was only at the Cleveland Clinic. I went there for my breast cancer surgery and treatments, so when my arm developed lymphedema, I went back to the doctors there. Although the therapist was good, getting in only 1x week to see her for only 1 hour was challenging. There is only 1 person in the entire Cleveland Clinic certified in Vodder technique. I did not get enough manual lymph drainage. I did get a glove and sleeve but my condition never went down to a close to normal level. The whole idea was to go through the process so I could get a glove/sleeve prescription. | |
| Kessler institute of Rehabilitation | Various locations | NJ | USA | Difficult to get someone with more than a few hours of training | |
| PennTherapy and Fitness | Westampton | NJ | USA | THe clinician is very knowlegable and the progam through the University of Pennsylvania is comprehensive. I did have to purchase my garments from a pharmacy, however the therapist was excellent is making sure I received teh right garment and making sure it fit right and I knew how to put it on!! | |
| Aurora Health Care-Lymphedema Clinic | Oshkosh | WI | USA | very accommodating to my needs, did not rush treatment, knowlegable staff. This is the only clinic available in my area for lymph treatment. | |
| Princess Royal Hospital | TELFORD | Shropshire | United Kingdom | New clinic run by dedicated therapist who trained especially to take this job | |
| Baptist East Hospital | Louisville | KY | USA | ||
| St. Joseph Mercy Hospital | Ann Arbor | MI | USA | Therapist was very good and quite knowledgeable. I was pleased going there. | |
| Lerner center | ?? | NJ | USA | Peopke at the clinis ere very kind and supportive, however I found the treatment to be quite unreasonable and difficult. I was not able to maintain treatment after leaving t he clinic. I wouldn't recomend it to anyone who's not willin gto spend a great portion of their time in treatment or had difficulty sleeping in bandages. It probabaly would be easier for ther people that only have lymphedema in one extremity, but mine is in all four so it took an enormous amount of time. Most importantly, the treatment works if you comply and keep up with it. | |
| Kessler Horizon Lymphedema Centers | Ellicott City | MD | USA | The therapists are very efficient, professional, caring of the patient's comfort, responsive to questions, work closely to be prompt for their appointments. | |
| summa health systems/akron, ohio, usa, lymphedema | summa health systems/akron | ohio | USA | it was pleasant nothing special | |
| Center for Orthopedic and Lymphatic Physical Therapy | Port Orchard | WA | USA | I was taught how to do manual lymphatic drainage massage myself, plus was treated at the clinic for several visits. | |
| Carolinas Medical | Charolette | NC | USA | Dr. Stewart was very helpful and promising that her program would work for me. The lymphedema in my right leg was beginning to show signs of improvement when I found out that the insurance I have would not cover my therapy. In order for them to pay I have to have therapy in South Carolina and guess what? There are no clinics in South Carolina. So now I am just stuck with 200 + pounds of fluid in my legs and abdomen. | |
| st elizabeth scott street | lafayette | IN | USA | the ladie who did my treatment was very nice and told me alot i when twice aweek for six weeks i wear a sleve and hand glove for 8 hrs aday and a wrap at night i still had alot of swelling and that been almost a year ago and still hurts and some of my breast is still numb | |
| Mid-Atlantic Lymphedema Center | Ellicott City | MD | USA | The atmosphere was very positive - even fun. They were very thorough and gave lots of explanations about the therapy. My experience was very successful and positive. They were helpful and patient with my insurance problems. | |
| Vanderbilt Stallworth Rehabilitation Hospital, 2201 Capers Ave | Nashville | TN | USA | ||
| Allsaints Hospital | Fort Worth | TX | USA | My experience at this clinic is very nice becasue the the staff is equipped with CirCaid brnad gaments for my leg an dthey have offered me many excercises to do also. The actual location has been around for about 5 years now abd is staffed witth former Physical Theripists. This is the only Lymphedema location taht I aware of and any other treatments tahtI have gotten came from doctors who are not familiar with Lymphedema. | |
| Ctr for Physical Therapy & Exercise | Poway | CA | USA | Jennifer Reed (MSPT) is the lymphedema therapist. She has had extensive training and practice as a Navy officer. I started treatment with her just a month after some swelling in my hand was noticable. I wear a compression sleeve and have had a custom gauntlet made that covers my fingers to the end digit. Since the medicare prescriptions for treatment expire in one month, I usually have treatments of 1-2 a week for that time. Then Mrs Reed has given me a 13 Step MLD Home Program to follow. By doing the home program plus my husband massaging the area I cannot reach, my lymphedema has been kept more or less under control. I do not see the oncologist very often anymore, and it is difficult to get prescriptions. When my arm becomes sore, uncomfortable and I am unable to lessen the pressure, I obtain another prescription and return to Jennifer for treatment. Since my surgery was recent (March 1998) I have not visited any other clinics. In fact, Poway is ! | |
| Kaiser Sunset | Los Angeles | ca | USA | ||
| Mayo Clinic | Jacksonville | FL | USA | It was a pleasant experience. They showed me how the Jobst pump could work. | |
| Lymphedema Theraphy | Woodbury | Ny | USA | I just had a consultion and made a treatment plan for 20 days of therapy. We are waiting to see if the insurance company will pay it. If not... I guess there is nothing else to do. I found the staff very nice and aware of this problem. I have had the sypmtions for 3 or so years but now I finaly have a diagnosis. | |
| Sacred Heart Hospital/Physical Therapy Unit | Spokane | wa | USA | The staff at the clinic were great - very helpful and very well trained. I would indeed go back again if my insurance would pay and if it were closer to my home. A 6 hour drive is not always a do-able thing. I would recommend them at the clinic - they were wonderful. | |
| Mid-Atlantic Lymphedema Center | Rockville | MD | USA | I've only been once. I start my actual treatment on 7/10/00 | |
| Oconomowoc Hospital | Oconomowoc | WI | USA | The therapist was excellent. She provided me training in massage, exercises, wrapping. However my insurance company rejected the referral and I had to stop going because I could not afford to pay for it myself. The therapist put me in touch with a compression company and I was able to buy a breast unit myself. I would go again and recommended it to a friend. However, I will not be able to because of insurance reasons. | |
| University Hospital LE Clinic | Stony Brook | NY | USA | Therapist works WITH me to find right compression vests to encompass chest wall, underarm and bicep. Caring, compassionate, funny and a darn good therapist! | |
| NorthWestern Memorial Hospital | Chicago | IL | USA | The lymphedema started on my left inner thigh. I had surgery to remove the mass on the 30th of August. They ended up taking about 11 to 15 lbs. of tissue and fluid. I was there for three more days. The staff was wonderfully understanding, and my Doctor helped me through it. | |
| Legacy Cood Sam.Oncology Services | Portland | or | USA | Very compassionate and good physical theraphists. Worked very hard with and for me. Couldn't have been better. Great results. Did not have needed support at home. Husband supportive at 1st but it came out later that he hated wrapping my"fucking legs". I have a CFS leak and cannot bend over for the length of time it takes to wrap legs myself. New DR.with the changed medical plan does not beleive in mannual lymph drainage. Will not refer me th have my legs massaged. Now in the "Providence Hospital"PMG group and they do not have a clinic or treatments for lymphedema available. Legs in trouble. Need new garments. etc. No refferal to get them. | |
| Lymphedema Therapy | woodbury | NY | USA | ||
| Olympic PT | Seattle | WA | USA | Olympic hired a fabulous PT who has lymphedema, studied in Germany and trained a cadre of people in Seattle. Some of them have branched out on their own, including my 2 favorite folks. | |
| Northern Vascular Support, Inc. | Chicago | IL | USA | I am a 49-year-old female who had a mastectomy in 2002. I completed chemo and radiation therapy that same year and was referred to a lymphedema therapist by my oncologist. Soon after my therapy was completed, I was fitted for a compression arm sleeve and glove by a company called Northern Vascular Support. I found them to be very accommodating and helpful. | |
| Theraphy Solutions | Kennewick | WA | USA | They are the only one in the area in which I live that now anything about the manuel (Vodder) treatment. | |
| UMC Pain Center | Lebanon | TN | USA | ||
| HealthSouth Lymphedema Clinic | Texarkana | TX | USA | Their mission is to treat the patient, family andcreating a treatment plan that is customized for each individual. Education, MLD/CDT, Speacialized therapist(inpt/outpt)-2 | |
| Providence Kodiak Island Physical Therapt | Kodiak | Ak | My therapist is extremely well trained. She has a Master\'s Deree in Physical Therapy and is a certified Lymphedema Therapist. | ||
| Providence Kodiak Island Physical Therapt | Kodiak | Ak | My therapist is extremely well trained. She has a Master\'s Deree in Physical Therapy and is a certified Lymphedema Therapist. | ||
| SSM Rehabilitation | Lake St. Louis | MO | USA | My therapist was well educated and received over 150 hours of training to assist patients with lymphedema. She shared important information during each visit; helpful dietary tips, skin care management, compression wrap training, advice about compression garment usage, techniques to utilize during MLD, and genuine concern for my \ | |
| William E. Guy, M.D.,P.A. | Jacksonville?? | FL | I saw one other therapist, but I can't remember her name. She lives here in Tallahassee, FL. She just massaged my leg and wrapped it up in ace bandages. | ||
| Hilltop Therapy | Va. BEACH, VA. | VA | USA | ||
| Vanderbilt Univ. Stalworth Rehab | Nashville | TN | USA | I love that this clinic has taught me self maintenance of my lymphedema and has empowered me to take care of myself! | |
| Shriners | St.Louis | MO | USA | I liked how they help me diagnos what I had, but they made me feel like I was not improtant. One of the RN's said"well we have more important things, like ppl just getting out of surgery, so thats why the doctor is late." | |
| Shriners | St.Louis | mo | USA | I liked how they help me diagnos what I had, but they made me feel like I was not improtant. One of the RN's said"well we have more important things, like ppl just getting out of surgery, so thats why the doctor is late." | |
| Holzer Clinic Karen Meadows | Gallipolis | She is the only LANA certified therapist I have seen, so I don't have anything to compare it with. My custom hose don't fit and I don't know what to do. | |||
| Total Health Care | Westbury | NY | USA | I have found them to be the first place I've gotten real help for my Lymphedema. They did a 28 day program including manual drainage, wrapping and exercise. They then taught self wrapping, stockings and self-massage to continue therepy. If found success for the first time. I use the Lympha-press before but it just push the fluid up to go back down. The manual drainage actually seem to help move the fluid out. | |
| Phoenix Baptist Hospital | Phoenix | AZ | USA | They had a wonderful therapist but she left & I was not impressed with the other therapist. They were very nice to me but it was over a 6 month period to get the arm to a normal size. I think that was to long. | |
| St. Barnabas | Livingston | NJ | USA | got good information on lymphedema; mld therapy and taught to me; quality of therapists varied | |
| HealthSouth Greater Pitt | Monroeville | Pa | USA | This program is very comprehensive and can include aquatics if needed with a of great benefit to the patient. | |
| OPT, INC | Richmond | VA | USA | ||
| Ramsey physical therapy | St. paul | MN | USA | The therapist was trained in a european form of massage. They taught me how to bandage as well as taught me bhow to do the massage myself. | |
| Surburban Hospital Physical Therapy | Louisville | Ky | USA | ||
| Desert Samaritan Hospital | Mesa | AZ | USA | See above. The therapists seem knowlegable and are very nice. Treatment is always on time. There is a 2 to 3 month waiting period to begin treatment. There are very inadequate numbers of treatment facilities and qualified therapists in the Phoenix area. I am trying to persuade other facilities to start or expand treatment. I am a nurse, and a community activist (can you tell?) | |
| summa's lymphedema center | akron | OH | USA | This is the only clinic I have ever been to,so I don't have anything to compare it with. I feel that I was treated well there. I only had to go for three weeks every day. they do have a support group that meets every other month at the hospital. | |
| Florida Hospital Rehab Ctr | Lake Mary | FL | USA | The OT who provides the lymphatic drainage massage is very good to work with. We do not know exactly how long I have had this condition, because it started out mildly and then about 4 years ago got much worse. I have been to many different doctors, but none of them can seem to find the cause. I have the lymphadema throughout my entire body. The OT has been very encouraging and we have worked together on nearly a daily basis. She has taught me excercises, but we have not done any bandaging as my torso is so blocked, she feels that the bandaging will not do much good. Also, the insurance company only allows 20 treatments, but t |

